Information
We can send you booklets and leaflets which we hope will help you to gain a better understanding of Trigeminal Neuralgia and the treatments currently available. This information will enable you to become more knowledgeable about the condition and explore various forms of treatment with your doctor or healthcare practitioner.
These are the booklets and leaflets we currently provide:
• Trigeminal Neuralgia
• Treating Trigeminal Neuralgia with Medicine
• Considering Surgery for Trigeminal Neuralgia
• Glycerol Injection & Thermocoagulation (Radiofrequency Lesioning)
• Microvascular Decompression
• Gamma Knife Treatment
• Strategies for Coping with Pain
• Caring for Someone with Trigeminal Neuralgia
• Post Herpetic Neuralgia
• Multiple Sclerosis and Trigeminal Neuralgia
• Glossopharyngeal Neuralgia
We also send out a quarterly newsletter featuring articles about TN and any updates on treatments. Back copies of newsletters are available for £1.50 each in printed form or £5.00 for a CD containing the set.
We can supply two specialist publications (available only through the TNA):
“Striking Back" - The layman’s guide to what is sometimes described as the world’s worst pain” by George Weigel and Dr Kenneth Casey
“Insights" – Facts and Stories Behind Trigeminal Neuralgia” by Professor Joanna Zakrzewska
Both are available through the TNA UK for £17.50 each, which includes postage and packing, or at a discounted price of £32.00 for the two, including p&p.
Please send a cheque, made payable to TNA UK, to:
TNA UK, PO Box 234, Oxted, Surrey RH8 8BE
We hold our Annual General Meeting in June each year in different parts of the country, to which we invite members of our Medical Advisory Board - specialists, neurologists and neurosurgeons - as speakers to give presentations and take part in group workshops where members can question them at length in an informal setting.
Our first two-day conference was held at Keele University, Stoke-on-Trent, in June 2007 which was a great success and an event which we hope to repeat, again varying the venue across the UK so that all members have a chance to take part. Here are some of the comments from last year’s attendees:
Out of a total of 10, attendees were asked:
How well did the conference fulfil your expectations 9.5
Did you find it useful to meet fellow sufferers? 9.4
Did you find it useful to meet expert doctors? 9.7
Has the conference improved your confidence in dealing with your pain? 8.6
And here are some of the comments:
The best thing about this conference was...
Meeting other sufferers and doctors who are dedicated to helping people with TN.
Brilliantly organised, excellent location.
The sharing of experiences and the friendships, superb organisation.
A totally enjoyable and informative conference.
Seeing how enthusiastic and committed the professionals and surgeons are.
The worst thing was...
Realising that I have been suffering for 17 years when I could have been getting more help!
