Personal Organisations
Action MS: Northern Ireland's leading MS Charity. http://www.actionms.co.uk
Action on Pain: Action on Pain is dedicated to providing support and advice for people who are affected by chronic pain. It is run by volunteers many of whom either have or are affected by chronic http://www.action-on-pain.co.uk
(The) Brain and Spine Foundation: Founded in 1992 to help the 10 million people affected by brain and spine conditions in the UK. They are committed to improving services across the whole spectrum of neurological conditions, as well as recognition and awareness of the impact of these conditions. http://www.brainandspine.org.uk
British Association of Oral Maxillofacial Surgeons: Oral and maxillofacial surgery is the surgical specialty concerned with the diagnosis and treatment of diseases affecting the mouth, jaws, face and neck. This website contains information about oral and maxillofacial resources and about BAOMS which we hope will be of interest and benefit to clinicians members of the public. http://www.baoms.org.uk
Depression UK: A national self-help charity promoting mutual support between individuals affected by depression, through pen and phone friend schemes, internet D-UK Chat, and newsletters with many members' contributions. http://www.depressionuk.org
Disability Direct: The Disability Information Website - Everything you need, all in one place! Our aim is to empower disabled people to make their own choices and improve their quality of life and independent living opportunities through the provision of information, advice and advocacy. Centred on Derby and Nottingham. http://www.disabilitydirect.com
DIPEx (Database of Patient Experiences): Healthtalkonline is the award-winning website of the DIPEx charity and replaces the website formerly at dipex.org. Healthtalkonline lets you share in other people's experiences of health and illness. You can watch or listen to videos of the interviews, read about people's experiences and find reliable information about conditions, treatment choices and support. http://www.healthtalkonline.org
Dr Foster Health: Dr Foster Health aims to help visitors access impartial, comparative information detailing the quality of NHS and private hospitals, what services they offer and how services compare between these hospitals. They also publish clinically reviewed guides and provide data about specific medical conditions, treatments, waiting times and length of stay. All their services are free and do not require sign-up or registration, and their activities are monitored by an independent Ethics Committee led by key healthcare opinion leaders. http://www.drfosterhealth.co.uk
EQUIP: This is an NHS website which contains links to quality-checked health and social care information for the UK public. There is also information about national support groups and organisations and also local information for the West Midlands region. http://www.equip.nhs.uk
European Organisation for Rare Diseases: EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 423 rare diseases patient organisations in over 43 countries. http://www.eurordis.org
Expert Patients Programme: FREE self-management courses providing tools and techniques to help you to take control of your health and manage your condition better on a daily basis. The majority of Expert Patients Programme Community Interest Company (EPP CIC) courses are delivered by trained tutors who have experience of living with a long-term health condition. http://www.expertpatients.co.uk
Fibromyalgia Association UK (FMAUK): FMA UK was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline. http://www.fibromyalgia-associationuk.org
Headbanging: A website for those suffering from Chronic Daily Headaches. This website has been set up by a nurse with a professional and academic interest in headaches and has some useful information and links. http://www.headbanging.org/
Healthtalkonline: Healthtalkonline is the award-winning website of the DIPEx charity and replaces the website formerly at dipex.org. Healthtalkonline lets you share in other people's experiences of health and illness. You can watch or listen to videos of the interviews, read about people's experiences and find reliable information about conditions, treatment choices and support. http://www.healthtalkonline.org
Herpes Viruses Association: The Herpes Viruses Association helps to improve life for people with herpes simplex. http://www.herpes.org.uk
Living with TN: Leading online support group for Trigeminal Neuralgia (TN) survivors. http://www.livingwithtn.org/
Medicine Guides: Medicine Guides is a new online resource providing patients and the general public with information about UK-licensed medicines. Medicine Guides have been developed by the Department of Health, the NHS, the pharmaceutical industry and patient and professional groups, and are made available in partnership with NHS Direct Online. The aim of Medicine Guides is to enable patients to make informed decisions; be more involved in treatment choices; and make best use of their medicines. Information on pain can be found here. http://www.medicines.org.uk/guides
(The) Migraine Action Association: The UK's leading medical research and patient support charity for the condition. http://www.migraine.org.uk
(The) Migraine Trust: The Migraine Trust is the UK's leading medical research and patient support charity for the condition. The Trust is committed to supporting sufferers and their families by funding and promoting research, improving diagnosis and treatment, providing information and raising awareness of migraine as a significant public health problem. http://www.migrainetrust.org
MS Society of GB & NI: The MS Society is the UK's largest charity for people affected by multiple sclerosis (MS) - about 100,000 people in the UK. http://www.mssociety.org.uk
(The) MS Trust: The MS Trust is a national charity. They provide information for anyone affected by, and health professionals working with people with MS. There is a factsheet on pain available for downloading and chat room sessions. http://www.mstrust.org.uk
National Voices: National Voices is a coalition of more than 200 national health and social care organisations, coming together to ensure a stronger voice for all those who come into contact with the NHS and care services, and the voluntary organisations that help them. Our independence of Government, and our wide representation, rooted in service user experiences, gives us the authority we need to influence decision makers. http://www.nationalvoices.org.uk
Neuropathy Trust: The Neuropathy Trust is a worldwide charity to provide a lifeline to people affected by Peripheral Neuropathy (PN) and Neuropathic Pain (NeP). It is the primary function of the Trust to ensure, irrespective of the cause of the peripheral neuropathy or neuropathic pain (whether known or otherwise) that patients, family, carers and health care providers receive the highest possible level of information and support. The Neuropathy Trust is independent of any government, political ideology, economic interest or religion. http://www.neurocentre.com
Neurosupport: The aims of Neurosupport are to provide advice, information and support to people with a neurological condition, their families and care professionals, and to raise the awareness of neurological conditions in the community at large. The Centre has meeting and conference facilities, a dedicated library and database, produces regular newsletters, and provides office accommodation for a number of neurological charities http://www.neurosupport.org.uk
NHS Choices: NHS Choices is the online 'front door' to the NHS. It is the country's biggest health website and gives all the information you need to make choices about your health. http://www.nhs.uk
NHS Direct: This site is at the forefront of 24-hour health care - delivering telephone and e-health information services day and night direct to the public. http://www.nhsdirect.nhs.uk
NHS Direct (Wales): http://www.nhsdirect.wales.nhs.uk
NHS24 (Scotland) http://www.nhs24.com
Pain Association of Scotland: Pain Association Scotland is a unique organisation that has pioneered the development and delivery of the self-management training aproach to chronic pain throughout Scotland for the last 19 years. http://www.painassociation.com
Pain Concern: Pain Concern is a charity offering information and support for people who live with pain, those who care for and about them http://www.painconcern.org.uk
Pain.com: Pain.com is a unique online resource offering the most up-to-date pain and pain management information on a variety of different topics written by medical professionals for both the consumer and healthcare specialist. It offers a huge online library of information on pain. http://www.pain.com
Patient.co.uk: Patient UK was first launched in 1997 by PiP (Patient Information Publications). It started as a directory of UK websites which provided information of health, disease and related issues. In December 2002, Patient UK was re-launched as a joint venture between PiP and EMIS (Egton Medical Information Systems). For the re-launch Patient UK has been extensively revised and considerably more content has been added. Our aim is to be a reliable and comprehensive source of health and disease information, mainly aimed at the UK general public, but of interest to all. http://www.patient.co.uk
Patients' Association: The Patients Association advocates for greater and more equitable access to high-quality, accurate and independent information for patients. Our aim is to reduce health inequalities by helping patients to be better informed and by campaigning for patients to have the right to be involved in decision-making. http://www.patients-association.com
RADAR (Royal Association for Disability and Rehabilitation): RADAR is the UK's largest disability campaigning organisation, with a membership of over 900 disability organisations and individual campaigners. http://www.radar.org.uk
Shingles Support Society: The Shingles Support Society supplies information on shingles and post-herpetic neuralgia (PHN for short): what they are and how to treat them. http://www.shinglessupport.org
Stroke Association: The Stroke Association is the only UK wide charity solely concerned with combating stroke in people of all ages. http://www.stroke.org.uk
Talking Life: As TALKING LIFE PUBLISHING, we are also specialist producers of self-help health audio tapes & cds. Our imprint Sod-It! Books publishes highly popular cartoon books. Our 'coping' health tapes, cds & books have helped tens of thousands of people cope with pain, depression, anxiety, stress and other common health problems as well as providing them with high quality, easy-to-follow relaxation and other DIY exercises for better health & wellbeing. Our audio products are produced in close association with leading UK Doctors & other medical specialists, including: the Pain Relief Foundation and The Royal College of Psychiatrists. View our on-line shop here: Health CD's, Tapes & Books. http://www.talkinglife.co.uk
Page last updated on 30 Aug 2011