Defining Core Outcome Sets in Trigeminal Neuralgia

TN sufferers required for a Trigeminal Neuralgia study. Participants will receive £30 for taking part in the online focus group. Please continue reading for further information and email carolina.venda-nova@nhs.net to enquire about taking part.

  • The TNA UK and Rosetrees Trust are funding a UCL PhD project on the core outcome set (COS) for Trigeminal Neuralgia (TN)
  • We aim to work together with patients who have been diagnosed with TN to develop a set of treatment outcomes that are meaningful for patients
  • Inclusion criteria: participants must have been diagnosed with TN (not due to a tumour) by a GP, neurologist, neurosurgeon, headache or facial pain specialist and be a member of the TNA
  • Participants will be asked to:
  • Attend one 90 minute online focus group (meeting) OR
  • Complete an online anonymised survey
  • Participants will be asked to share their thoughts and give their opinion about which treatment outcomes they consider important
  • Participants in the online focus groups will receive £30 for attending
  • This study should not cause any harm; all participant details will be anonymised
  • If you wish to have more information about this study, please contact Carolina Venda Nova (PhD student) – carolina.venda-nova@nhs.net or the TNA UK

This research project is being done under the direction of Professor Joanna Zakrzewska, Consultant at UCLH/UCL.
Ethical approval has been granted by UCL REC 17679/001