Trigeminal neuralgia F A Qs 1 I have been diagnosed with trigeminal neuralgia, what should I do now? 2 I have a referral to a specialist, what do I do now? 3 What should I ask the specialist? 4 Carbamazepine (Tegretol) isn’t working when I take one tablet and it leaves me feeling really spaced out. What can I do? 5 I have developed a rash whilst taking the medication, what should I do? 6 Are there any other medications available? 7 My trigeminal neuralgia had disappeared but now, six months later, it has reappeared. Is this normal? 8 I’ve just had an MRI scan and a compression was found. Does this mean I need to have a surgical procedure? 9 What is the MVD procedure? 10 Is the MVD brain surgery? 11 I’m too unwell to have open surgery, are there other options available? 12 The pain seems to stem from a tooth. Should I have it extracted? 13 I’m finding it too painful to eat. What can I do? 14 I’ve heard of a treatment called PainShield. Will it be of use to me? 15 Is TENS (Transcutaneous Electrical Nerve Stimulation) likely to help relieve TN pains? And are the machines safe? Membership F A Qs a If I join the Association will my membership run for 12 months? b How do I make payment? c I am currently living abroad, how do I pay? d I don’t have a bank account, how can I pay my subscription? e My membership needs renewing, what do I do? f I can’t recall my membership number. Where can I find out about this? g I can’t remember my password. What do I do? Local Support Groups F A Qs i How can I join my Local Support Group? ii What happens in the groups? iii Will I need to participate (I’m worried because talking causes me pain)? iv Can I bring someone with me? Forum F A Qs I’m unable to access the forum, what should I do? General F A Qs G1 I’m hoping to start a family and have concerns about my medication – can you give me any advice? G2 I’m going on holiday soon and am worried about the flight. Is it true that flying can make TN pain worse? G3 I am worried about going to the dentist, can you give me any advice?