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Message from Aneeta Prem CEO

Dear Members and Friends,

I do hope that you are all well. For those of you who have contracted Covid and for those who are still suffering with the effects of this virus on top of your TN pain, we are all thinking of you and sending you our very best wishes for a full recovery.

Easter is a time for hope and new beginning. My sincere hope is that you may become pain free and experience remission.

The National Zoom is going to be held on Thursday 28th April @ 7.30pm.

Due to an overwhelming number of requests, Mr Sinan Barazi will be back!

Mr Sinan Barazi. Consultant Neurosurgeon FRCS (Neurol.Surgery), MRCSEd, B.Sc., MB BS

Please check your email for the link invitation if you are a member.

If you’re not a member, but would like to be, please get in touch with us.

*Volunteering Opportunities*

If you have some time on your hands and feel able to volunteer for TNA, there are a variety of roles where your help would be so valuable:

• running a Regional Support Group in your area.

• helping on the TNA telephone or email helpline.

• helping with social media – writing content for us.

• fund raising through sponsored running or walking, or maybe running a bake sale or suggesting that a club you belong to may want to nominate TNA as its charity for ongoing support?

As with any holiday period, for many, Easter time can bring an increased sense of isolation, especially when you are in excruciating pain and really feel unable to take part in various holiday activities. Be assured, you are not alone. Please, please feel free to make use of the helpline 0800 9991899 option 1. One of our team will be available to listen, to support you and to offer some words of encouragement, and advice.

For those of you who feel unable to speak because of your level of pain, please don’t forget that there is also the email helpline [email protected] , where a TNA volunteer will be able to read your enquiry and email you back.

With my very best wishes

Aneeta

Current information about the TNA UK Office, Medical Advice & Helplines during Pandemic

Please note that, due to the Coronavirus pandemic, the TNA UK office may not be open as normal.

THE TELEPHONE AND EMAIL HELPLINES ARE STILL IN OPERATION.

FOR MEDICAL ADVICE, CLICK HERE

HOW TO ACCESS NHS SERVICES ONLINE, CLICK HERE

PLEASE READ THESE SUGGESTIONS: Advice for TN Sufferers concerning Face Masks – July 2020

If you would like to renew your membership or have any queries about your membership we will endeavour to contact you as soon as we are able.

All planned Local Support Group meetings have been cancelled – if you would like to contact any LSG Leader for advice or help, please see details in the Members’ area of the website. Some meetings are now taking place via Zoom so please do contact the LSG Leaders. All external and internal meetings due to take place in the foreseeable future have also been cancelled though we are hoping to reschedule some for next year.

Thank you for your understanding and continued support of TNA UK. July 2020

Comment from one of our members that attended on Saturday: Just a line to say thank you to you and all those responsible for yesterday’s conference. A huge amount of work, I am sure – I was a first timer and I found it helpful and friendly and also encouraging that work is being done to try to find a successful solution to the ghastliness of TN.

“I would like to say how much I love your reports which I read with interest in every publication you send” Sheila

“The pack you sent me was extremely useful – it was well put together and thoughtful information” Catherine

“A fantastic charity offering help and support to a needy and sometimes desperate sufferer” Linda

“TNA UK is a remarkable organisation. Thank you for the help and support that you provide” Alan

“TNA UK is a brilliant resource for help and advice” Chris

“TNA UK is a life saver and does so much for people” Tammy

About TN and TNA UK

TRIGEMINAL NEURALGIA is an extremely severe unilateral episodic facial pain that tends to come and go unpredictably in sudden shock-like attacks. The pain is normally triggered, for example by light touch, and is described as stabbing, shooting, excruciating or burning. It usually lasts for a few seconds but there can be many bursts of pain in quick succession. There can be slight variations of trigeminal neuralgia which require different treatments.

WE ARE the Trigeminal Neuralgia Association UK (TNA UK). We provide information, support and encouragement to those who suffer this excruciatingly painful condition. Our aim is to raise awareness of TN within the medical community and the general public at large. As a registered charity, TNA UK is entirely dependent on donations and annual membership fees in order to continue its work. We receive no funding whatsoever from central Government or corporate organisations.