Latest News
Latest on Biogen Drug Trial
Biogen BIIB074 (vixotrigine) trigeminal neuralgia Phase 3 studies are not yet recruiting. Further information can be found at https://clinicaltrials.gov/ct2/show/NCT03637387?cond=trigeminal+neuralgia&draw=4&rank=21 and...
Participants needed for The TRINCOS Study
Defining Core Outcome Sets in Trigeminal Neuralgia TN sufferers required for a Trigeminal Neuralgia study. Participants will receive £30 for taking part in the online focus group. Please continue reading for further information and email carolina.venda-nova@nhs.net to...
NEW Young Person’s Support Group
Mollie Dyer, one of our members, was diagnosed with TN at the age of 14. With personal experience of trying to manage her TN with medication and then having an MVD, Mollie is keen to support other young people through their journeys with this condition. If you are...
New Local Support Group – West Yorkshire
We are pleased to announce that TNA member Harry Smith has volunteered to lead a local support group in West Yorkshire. The first meeting of the West Yorkshire group will take place early 2021, conducted via Zoom. If you would like to take part, please email Harry on...
Virtual Conference Powerpoint
You can now find Professor Zakrzewska's slides from the virtual conference on 26th Nov 2020 in the Virtual Conferences dropdown in the Publications and General Interest section of the Members Area
Nottingham TNA Support Group Meeting November 2020
The third (and virtual) meeting of the Nottingham TNA Support Group took place on the 28th of November run by John Vanhegan with Helen Clayton as host. Seven attended - including two new faces. Much good news was reported (we could certainly use it lately) by several...
New Derby Online Support Group Meeting
TNA are pleased to announce that the first online local support group meeting for the Derby area is due to take place on Saturday 5th December at 1pm. If you would like to join the meeting please send an email to Deborah Edwards at deborah.edwards@tna.org.uk Deborah...
North West Local Support Group – Saturday 17th October 2pm
I hosted the first local support group meeting over Zoom and we had 11 members attend. We have very minimal issues with everyone getting logged on to Zoom, except one member who we could not see, but had audio for. I will be touching base with this lovely lady before...
New website added to our links under Personal Websites.
My Live Well with Pain is completely free to use, and is full of trusted techniques that people with persistent pain have found useful, in helping them to get on with their lives and live well with pain.
July update for members
Please check the members area for the latest news from the Association. We are issuing these updates in lieu of our quarterly Newsletters so don't forget to sign up for future issues via your profile on the website.