Newly diagnosed (click here) or need support?  Call 01883 370214

Can you help us with research?  If, so, please go to the RESEARCH page in the Member’s area.

Can you help us with research?  If so, please go to the RESEARCH page in the Member’s area.

 

COVID-19 Update

 

WE ARE STILL OPEN

FOR MEDICAL ADVICE, CLICK HERE

HOW TO ACCESS NHS SERVICES ONLINE, CLICK HERE

PLEASE READ THESE SUGGESTIONS: Advice for TN Sufferers concerning Face Masks – July 2020

If you would like to renew or have any queries about your membership please call us on 01883 370214

Some Local Support Group meetings are now taking place via Zoom so please do contact the LSG Leaders. 

Thank you for your understanding and continued support of TNA UK.  Dec 2020

 

“I would like to say how much I love your reports which I read with interest in every publication you send”   Sheila

“The pack you sent me was extremely useful – it was well put together and thoughtful information”   Catherine

“A fantastic charity offering help and support to a needy and sometimes desperate sufferer”    Linda

“TNA UK is a remarkable organisation.  Thank you for the help and support that you provide”    Alan

“TNA UK is a brilliant resource for help and advice”     Chris

“TNA UK is a life saver and does so much for people”   Tammy

About TN and TNA UK

TRIGEMINAL NEURALGIA is an extremely severe unilateral episodic facial pain that tends to come and go unpredictably in sudden shock-like attacks. The pain is normally triggered, for example by light touch, and is described as stabbing, shooting, excruciating or burning. It usually lasts for a few seconds but there can be many bursts of pain in quick succession.  There can be slight variations of trigeminal neuralgia which require different treatments.

WE ARE the Trigeminal Neuralgia Association UK (TNA UK).  We provide information, support and encouragement to those who suffer this excruciatingly painful condition. Our aim is to raise awareness of TN within the medical community and the general public at large.  As a registered charity, TNA UK is entirely dependent on donations and annual membership fees in order to continue its work.  We receive no funding whatsoever from central Government or corporate organisations.

Latest News

Latest on Biogen Drug Trial

Biogen BIIB074 (vixotrigine) trigeminal neuralgia Phase 3 studies are not yet recruiting. Further information can be found at https://clinicaltrials.gov/ct2/show/NCT03637387?cond=trigeminal+neuralgia&draw=4&rank=21 and...

Participants needed for The TRINCOS Study

Defining Core Outcome Sets in Trigeminal Neuralgia TN sufferers required for a Trigeminal Neuralgia study. Participants will receive £30 for taking part in the online focus group. Please continue reading for further information and email carolina.venda-nova@nhs.net to...

Derby online support group meeting 6th Feb

The next online local support group meeting for the Derby area is due to take place on Saturday 6th February at 11am. As this is an online meeting anyone from any area can join this meeting. If you would like to join the meeting please send an email to Deborah Edwards...

NEW Young Person’s Support Group

Mollie Dyer, one of our members, was diagnosed with TN at the age of 14. With personal experience of trying to manage her TN with medication and then having an MVD, Mollie is keen to support other young people through their journeys with this condition. If you are...

New Local Support Group – West Yorkshire

We are pleased to announce that TNA member Harry Smith has volunteered to lead a local support group in West Yorkshire. The first meeting of the West Yorkshire group will take place early 2021, conducted via Zoom. If you would like to take part, please email Harry on...

Derby online local support group meeting – 5th December 2020

The first Derby Local Support Group meeting was held via Zoom on 5th December 2020. Eleven people had requested an interest in joining the meeting and on the day seven people joined the meeting. I started the meeting by explaining some guidelines for the meeting. We...

Virtual Conference Powerpoint

You can now find Professor Zakrzewska's slides from the virtual conference on 26th Nov 2020 in the Virtual Conferences dropdown in the Publications and General Interest section of the Members Area

Nottingham TNA Support Group Meeting November 2020

The third (and virtual) meeting of the Nottingham TNA Support Group took place on the 28th of November run by John Vanhegan with Helen Clayton as host. Seven attended - including two new faces. Much good news was reported (we could certainly use it lately) by several...

New Derby Online Support Group Meeting

TNA are pleased to announce that the first online local support group meeting for the Derby area is due to take place on Saturday 5th December at 1pm. If you would like to join the meeting please send an email to Deborah Edwards at deborah.edwards@tna.org.uk Deborah...

North West Local Support Group – Saturday 17th October 2pm

I hosted the first local support group meeting over Zoom and we had 11 members attend. We have very minimal issues with everyone getting logged on to Zoom, except one member who we could not see, but had audio for. I will be touching base with this lovely lady before...