Newly diagnosed (click here) or need support?  Call 01883 370214

Can you help us with research?  If, so, please go to the RESEARCH page in the Member’s area.

Can you help us with research?  If so, please go to the RESEARCH page in the Member’s area.

 

 

Current information about the TNA UK Office, Medical Advice & Helplines during Pandemic

Please note that, due to the Coronavirus pandemic, the TNA UK office may not be open as normal.

THE TELEPHONE AND EMAIL HELPLINES ARE STILL IN OPERATION.

FOR MEDICAL ADVICE, CLICK HERE

HOW TO ACCESS NHS SERVICES ONLINE, CLICK HERE

PLEASE READ THESE SUGGESTIONS: Advice for TN Sufferers concerning Face Masks – July 2020

If you would like to renew your membership or have any queries about your membership we will endeavour to contact you as soon as we are able.

All planned Local Support Group meetings have been cancelled – if you would like to contact any LSG Leader for advice or help, please see details in the Members’ area of the website.  Some meetings are now taking place via Zoom so please do contact the LSG Leaders. All external and internal meetings due to take place in the foreseeable future have also been cancelled though we are hoping to reschedule some for next year.

Thank you for your understanding and continued support of TNA UK.   July 2020

 

 

 

 

Wednesday 7th October 2020 was
Trigeminal Neuralgia Awareness Day

Here is our message for the day:

This is an incredibly important day to raise awareness for those suffering from Trigeminal Neuralgia (TN). This national day allows those that suffer from such life changing pain to share their stories and help educate professionals and others about what TN is.

For those that care and love someone going through this pain it is a chance to come together for support. Many people are not diagnosed and suffer for years not understanding why they are in constant pain.

We ask that today, if you can ask friends and family to wear something teal to show solidarity. And if you have the chance to speak to at least one person and help raise awareness.

Let’s make sure every health care professional from doctors, nurses and dentists can identify TN early so those that of us suffering can get help and we hope one day a cure.

This is seen as a hidden disability and although right now there is no cure, by fundraising to help fund research hopefully one day TN suffers may be pain free.

Aneeta Prem
Patron, TNA

Covid-19 TN advice on previous slide

 

 

TNA UK AGM and Workshop - 2019

Comment from one of our members that attended on Saturday:  Just a line to say thank you to you and all those responsible for yesterday’s conference.  A huge amount of work, I am sure – I was a first timer and I found it helpful and friendly and also encouraging that work is being done to try to find a successful solution to the ghastliness of TN.  

“I would like to say how much I love your reports which I read with interest in every publication you send”   Sheila

“The pack you sent me was extremely useful – it was well put together and thoughtful information”   Catherine

“A fantastic charity offering help and support to a needy and sometimes desperate sufferer”    Linda

“TNA UK is a remarkable organisation.  Thank you for the help and support that you provide”    Alan

“TNA UK is a brilliant resource for help and advice”     Chris

“TNA UK is a life saver and does so much for people”   Tammy

About TN and TNA UK

TRIGEMINAL NEURALGIA is an extremely severe unilateral episodic facial pain that tends to come and go unpredictably in sudden shock-like attacks. The pain is normally triggered, for example by light touch, and is described as stabbing, shooting, excruciating or burning. It usually lasts for a few seconds but there can be many bursts of pain in quick succession.  There can be slight variations of trigeminal neuralgia which require different treatments.

WE ARE the Trigeminal Neuralgia Association UK (TNA UK).  We provide information, support and encouragement to those who suffer this excruciatingly painful condition. Our aim is to raise awareness of TN within the medical community and the general public at large.  As a registered charity, TNA UK is entirely dependent on donations and annual membership fees in order to continue its work.  We receive no funding whatsoever from central Government or corporate organisations.

Latest News

North West Local Support Group – Saturday 17th October 2pm

I hosted the first local support group meeting over Zoom and we had 11 members attend. We have very minimal issues with everyone getting logged on to Zoom, except one member who we could not see, but had audio for. I will be touching base with this lovely lady before...

Reports from Local Support Group meetings

Please visit the members area for reports from the latest meetings for the West of Scotland and Cheshire.

First meeting of the new West of Scotland support group!

Please check the members area for details of this meeting.

New website added to our links under Personal Websites.

My Live Well with Pain is completely free to use, and is full of trusted techniques that people with persistent pain have found useful, in helping them to get on with their lives and live well with pain.

Cheshire Local Support Group meeting

Please check the members area for the date of the next meeting.

Nottingham Support Group meeting

Please check the members area for details of the September meeting of this group.

Report from South East Essex meeting via Zoom

To read the report from this meeting please go to the members section.

July update for members

Please check the members area for the latest news from the Association.  We are issuing these updates in lieu of our quarterly Newsletters so don't forget to sign up for future issues via your profile on the website.

Updates from the Association

Read our June update that was sent to members in the Newsletter Archive section in the members area.

Local Support Group News!

Check the members area for the report from the first virtual group meeting for the Nottingham group plus a report from the virtual Cheshire group meeting.