Victoria Woodley
London Marathon
Living with TN herself, Victoria took on the marathon to raise awareness and support others affected by the condition.
OUR IMPACT
Our Impact
Support. Connection. Evidence. Change.
For more than 25 years, TNA UK has supported people affected by trigeminal neuralgia and facial pain.
Today that support reaches people through our Freephone Helpline, e-helpline, Friendship Line, Regional Support Groups, national webinars, patient information, research engagement and a growing community of members, volunteers, clinicians, families and supporters.
≈3×
Membership since December 2020
2×+
Regional Support Group network
1,310
Raw response records in the 2026 patient survey
250,000+
Awareness-film views
What has TNA UK achieved since December 2020?
Since December 2020, TNA UK has expanded the ways people affected by trigeminal neuralgia can find support and connection. Membership has increased approximately threefold, the Regional Support Group network has more than doubled, the Friendship Line has been introduced, and the charity has developed national webinars, patient-experience evidence, research engagement and wider awareness work.
A NEW CHAPTER
December 2020 onwards
Aneeta Prem MBE became Chief Executive in December 2020. Working within trustee governance and alongside volunteers, staff, members and the Medical Advisory Board, TNA UK has since expanded its support services, community network, digital access, patient evidence and awareness work.
HOW TNA UK HAS GROWN
How TNA UK has grown since 2020
2021–22
Staying connected
Online meetings and national webinars helped members remain connected and brought clinicians and specialist knowledge directly into people’s homes. Digital access became increasingly important for people who were isolated, unable to travel or unfamiliar with online technology.
2022–23
More ways to reach another person
TNA UK launched the Friendship Line, developed local support groups, trained helpline volunteers, expanded Freephone Helpline arrangements, supported digital access, resumed Tea for TNA activity after Covid, ran national Zoom meetings, developed Face of TN and supported research through funding for a PhD student.
2024
Listening more closely
TNA UK’s 2024–25 Patient Experience Survey (fieldwork in 2024) received 572 raw response records; 567 consenting respondents formed the analytical cohort. Demand also increased across the Freephone Helpline, e-helpline and Friendship Line, while national webinars, Regional Support Groups and volunteer training continued.
Hundreds of individual experiences began becoming evidence.
2024–25
From listening to evidence
Patient-survey work continued, strengthening TNA UK’s evidence about lived experience, barriers to care and the everyday impact of TN and facial pain. The charity continued telephone support, Regional Support Groups, peer connection, webinars and information sessions, with a focus on accessibility and safe support.
2025–26
A patient voice reaching further
TNA UK continued developing patient involvement in research and professional education. Awareness work also grew, with Show TN 3 Fingers helping make an often invisible condition more visible.
SUPPORT THAT FEELS HUMAN
How does TNA UK support people with trigeminal neuralgia?
Freephone Helpline
0800 999 1899
For people looking for information, reassurance and somewhere to begin.
E-helpline
Written support for people who may find speaking difficult or simply prefer to write.
Regional Support Groups
Online, face-to-face and hybrid opportunities to meet people who understand TN.
Friendship Line
Regular human contact for people affected by loneliness or isolation.
National webinars
Specialist clinicians and experts brought directly to patients, families and carers.
THE PEOPLE BEHIND THE FUNDRAISING
Real people. Real reasons.
Our fundraisers run, walk, organise events and take on personal challenges because trigeminal neuralgia has affected them or somebody they love.
Adam Minors
London Marathon
Adam took on 26.2 miles for a cause close to his heart and to help people living with TN find support and guidance.
David De Rosa
London Marathon
David ran after seeing first-hand how trigeminal neuralgia can affect ordinary life and families.
WHAT IMPACT MEANS TO US
Impact is not simply how many things we do.
It is someone frightened by a diagnosis finding reliable information.
It is a person who has felt isolated speaking to somebody who understands.
It is a family learning more about what their loved one is experiencing.
It is a patient arriving at an appointment better prepared to ask questions.
It is individual experiences becoming evidence.
It is researchers and healthcare professionals hearing directly from the people whose lives are affected by their work.
And it is an often invisible condition becoming harder to overlook.
BUILT BY A COMMUNITY
No single person builds a charity.
TNA UK’s progress belongs to a community: people living with TN and facial pain, carers and families, volunteers, Regional Support Group leaders, fundraisers, donors, members, trustees, staff, clinicians, researchers and supporters.
Each contributes something different. Together, they make it possible for someone facing TN to find information, connection and support.
THERE IS MORE TO DO
Progress does not mean the work is finished. People still experience delayed or incorrect diagnosis. Access to specialist expertise is uneven. Treatments do not work equally for everyone. TN can affect work, relationships, independence and emotional wellbeing, while families and carers can become isolated too.
TNA UK will continue to listen, support, educate, gather evidence, work responsibly with clinicians and researchers and strengthen the voice of people affected by trigeminal neuralgia.
Evidence behind our impact
Figures and milestones on this page are drawn from TNA UK’s trustees’ annual reports, service records and published campaign information. Read our annual reports and policies, research work and leadership and Medical Advisory Board information. You can also view TNA UK’s official Charity Commission record (registered charity 1155001).