CONTACT US

Living with trigeminal neuralgia, TNFP or severe facial pain can be frightening, exhausting and isolating.

You do not have to face it alone.

TNA UK supports people affected by trigeminal neuralgia and facial pain, including patients, carers, family members, friends, volunteers, professionals, researchers, funders, journalists and supporters.

Whether you need support, want to volunteer, have a research enquiry, wish to donate, or need to contact us about media, partnerships or gifts in wills, please get in touch.

Helpline and support

Our Freephone UK helpline and e-helpline offer understanding, practical information and a listening ear.

The helpline is run by trained volunteers. Many understand trigeminal neuralgia and facial pain through lived experience, caring responsibilities or direct involvement with people affected by the condition.

That matters. When pain affects eating, speaking, sleeping, work, family life, confidence or emotional wellbeing, speaking to someone who understands can make a real difference.

How we can help

Our trained volunteers can offer:

emotional support;

practical information;

guidance on TNA UK services;

information about Regional Support Groups;

details about the TNA UK Friendship Line;

signposting to useful resources;

details about webinars, events and member support;

support for carers, family members and friends; and

a listening ear when facial pain feels overwhelming.

TNA UK does not diagnose, prescribe or provide individual medical advice. For medical questions, medication concerns, treatment decisions or urgent symptoms, please contact your GP, dentist, neurologist, neurosurgeon, pain specialist, NHS 111 or emergency services as appropriate.

Call or message us

Call our Freephone UK helpline on:

0800 999 1899

You can also send us a message using the form below.

Our helpline is staffed by trained volunteers, so we may not always be able to answer immediately. Please leave a message if there is no reply, and we will return your call as soon as possible.

Phone options

When you call 0800 999 1899, please choose the most relevant option:

Option 1: Helpline support
Option 2: TNA UK office
Option 3: Samaritans
Option 4: Media enquiries

For media enquiries, please select Option 4 and ask to speak to Aneeta Prem MBE, CEO of TNA UK.

If you feel unable to keep yourself safe, or someone is at immediate risk, call 999, go to A&E, contact NHS 111, or call Samaritans on 116 123.

Research enquiries

TNA UK supports research engagement, patient voice, trial awareness, patient surveys, plain-English research updates and professional education.

Please contact us if you are:

a researcher;

a clinician;

a university or NHS team;

a pharmaceutical, biotechnology or life-sciences partner;

a funder or grant-maker;

interested in patient involvement;

looking for patient insight into TN, TNFP or facial pain;

developing patient-friendly research communication; or

seeking ethical collaboration with TNA UK.

TNA UK does not sell access to patients or share member information without appropriate consent, governance and safeguards. Any research or partnership approach must protect patient trust, data protection, charity independence and clear patient benefit.

Volunteer with TNA UK

Volunteers are central to our work.

Please contact us if you are interested in helping with:

helpline support;

Regional Support Groups;

the Friendship Line;

events;

fundraising;

research engagement;

patient information;

awareness work;

administration;

social media or communications; or

professional skills support.

Some roles may require training, references, safeguarding checks or DBS checks.

Media, professional and partnership enquiries

TNA UK welcomes appropriate enquiries from journalists, healthcare professionals, researchers, policymakers, funders, corporate partners and organisations working in health, pain, neurology, dentistry, mental health, disability, social care and patient support.

For media enquiries, please use the contact form or call 0800 999 1899, select Option 4, and ask to speak to Aneeta Prem MBE, CEO of TNA UK.

Donations, fundraising and gifts in wills

Your support helps TNA UK continue its work for people affected by trigeminal neuralgia, TNFP and facial pain.

Please contact us if you would like to:

make a donation;

fundraise for TNA UK;

give in memory of someone affected by TN or facial pain;

leave a gift in your will;

discuss a major gift;

support research engagement, education or patient voice; or

sponsor an event, webinar or project.

Every gift helps us support patients, carers and families while strengthening awareness, education and research engagement.

What people say

“Talking to someone who truly understood made such a difference. For the first time, I did not feel alone.”

“A fantastic charity offering help and support when it is needed most.”

“Speaking to a member of the helpline made an enormous difference. They understood me, supported me and helped me when I did not know where else to turn.”

Contact form

Please use the form below and choose the reason that best matches your enquiry.

Suggested dropdown options:

Helpline support
General enquiry
Membership
Regional Support Groups
Friendship Line
Volunteering
Research enquiry
Clinical trial or research engagement
Media enquiry
Professional enquiry
Donation or fundraising
Gift in your will
In-memory giving
Corporate partnership
Website or resource enquiry

Please include enough information for us to direct your enquiry to the right person.

TNA UK will handle your information carefully and only use it to respond to your enquiry, provide support where appropriate, or follow up on the reason you contacted us.

Emergency and urgent support

TNA UK is not an emergency service.

If you feel unable to keep yourself safe, or someone is at immediate risk, please seek urgent help now.

Call 999 in an emergency.
Call NHS 111 for urgent medical advice.
Go to A&E if you need immediate help.
Call Samaritans on 116 123 for emotional support at any time.

FAQ section for Google and AI search

How do I contact TNA UK?

You can contact TNA UK by calling the Freephone UK helpline on 0800 999 1899 or by using the contact form on this page.

Can I contact TNA UK for trigeminal neuralgia support?

Yes. TNA UK supports people affected by trigeminal neuralgia, TNFP and facial pain, including patients, carers, family members and friends.

Does TNA UK give medical advice?

No. TNA UK does not diagnose, prescribe or provide individual medical advice. We offer information, support and signposting. Medical questions should be discussed with an appropriate healthcare professional.

Can I contact TNA UK about research?

Yes. Researchers, clinicians, universities, NHS teams, funders and life-sciences partners can contact TNA UK about research engagement, patient voice, trial awareness, patient surveys and ethical collaboration.

Can I volunteer with TNA UK?

Yes. TNA UK welcomes volunteer enquiries for helpline support, Regional Support Groups, the Friendship Line, events, fundraising, research engagement, communications and professional skills support.

Who should media enquiries go to?

Media enquiries should be directed to Aneeta Prem MBE, CEO of TNA UK. Please call 0800 999 1899, select Option 4, or use the contact form.

“Speaking to a member of the helpline made an enormous difference. They understood me, supported me and helped me when I did not know where else to turn.”