Firstly, thank you for considering raising funds in aid of TNA UK and its sufferers.  As a registered charity, TNA UK is entirely dependent on donations and annual membership fees in order to continue its work. We receive no funding whatsoever from central Government or corporate organisations, and are therefore totally dependent on charitable donations from people like you, so the fact that you are reading this page is of great significance to us.

We assume that you have already decided that fundraising might be of interest but maybe you now need some encouragement to get yourself going.

  • What could you do?
  • How do you organise it?
  • What are the pitfalls?
  • How do I keep it legal?
  • Where should I hold my event?

There are so many things that you can do and in order to help you out we have provided you with some ideas that you might want to consider and alongside this, you will also find help on how to set about organising an event or challenge.  The suggestions below cover a full range of ideas from the absurd-but-fun to more sophisticated activities such as wine tasting or cheese and wine parties so hopefully you find there is something to appeal to you.

Whatever you decide, the important thing is to find what suits your interests and available time and most of all, to have an enormous amount of fun doing it. Don’t forget to find out where the money you’re raising goes – the poster below will explain it all. 

So let’s start the fun and get the ball rolling! Check out the information below:




  • Press/Media
  • Contact the News Desk of your local newspaper.
  • Get in contact with the Editor of the local village/parish magazine.
  • Social Networking – Use Facebook, Twitter, YouTube and Google+, these are brilliant ways of getting the word out .
  • Let people know what you are planning to do.
  • Mention place, date and time of the Event and why you are doing it. Equally important, state the name of Trigeminal Neuralgia Association UK and most importantly, where donations should be sent. You may consider making a JustGiving page!
  • Photos and videos always make good viewing so if the newspaper or magazine isn’t taking a photo of you before and after the event, make sure you send them yourself. It will give you a good chance to introduce yourself before the event and to thank people for their sponsorship afterwards – it will also allow them to picture who this person is who is taking on this challenge or organising this event.

Don’t forget to encourage people to like our Facebook page and to follow us on Twitter.
NB Ensure that you set up the donation account so that any sponsors can make a donation quickly and easily and include a link.
TNA UK is very grateful for all donations and appreciates the fundraising efforts, small or large, undertaken by members and non-members. Thank you!

You might like to know some interesting statistics about fundraising:

  • The top activities for fundraising are: Coffee Mornings, Fun Runs, Walks, Bake Offs and Cycle rides.
  • Most people support/sponsor a family member and/or friend which means that most of the money you raise will come from people close to you.
  • Men are more likely to respond to requests to take part in an event.
  • By setting a target you are 73% more likely to reach it than without a target.

Just click on one of the headings below for more information

Do you want a free Fundraising Pack?

To request a fundraising pack by post, just email with your proposed fundraising idea and postal address. Alternatively, complete the blank document found here to give us the bones of your idea.

Please also print your own sponsorship form which has been approved by HMRC to allow accurate recording of the donations you raise. This can be found here.

The contents of your Fundraising Pack
T-shirt/Collecting Boxes/Donation envelopes
TNA UK literature and posters
Just Giving tips
Gift Aid form/Sponsorship form/Standing order from

We hope that whatever activity you undertook to raise funds in aid of TNA UK that it was enjoyable – even if some of the more strenuous ones gave you pause for thought!  Please let us know how you got on and, if you have any photos, even better.

We are delighted that member Cheryl was able to fundraise for TNA UK: “I am thrilled to report that my husband and myself completed the Cardiff Half Marathon on Sunday 1st October 2017 in aid of the Trigeminal Neuralgia Association UK.  My husband in 1:46:48 and myself in 2:42:07. In May 2012, I underwent MVD Surgery for my TN which I am pleased to report was 100% successful.  Prior to surgery I was struggling to even walk at times due to the pain from the impact of my foot touching the floor and the pain shooting up my face so I am thankful to be well enough to run and I will always appreciate how lucky I am for this. I wanted to raise money for the TNA but more importantly I wanted to raise awareness for the condition, which I believe I have achieved.”

Martin Oshaughnessy:                                                                                                              “I am glad to say that we completed our bike ride from Clitheroe in Lancashire to Scarborough in North Yorkshire return on the weekend Saturday 3rd /4th September 2016. The 220 mile round trip, in aid TNA UK was enjoyable yet at the same time tiring. All the lads that rode were fully committed to the cause and because of this, more and more people in our area and beyond are becoming aware of an illness they had previously not heard of. I have a rather personal interest in this charity as my wife has been diagnosed with TN since 2009 and who knows how long she has actually suffered from the illness. We both know the hardships that TN sufferers and their families have to deal with on a daily basis. We hope the money raised can help support other sufferers and we look forward to the next fund raising adventure.”


Audrey Hellen: “My mum suffered with this for many years culminating in a neuro op and pain relief. She found the association very useful as a source of information. I decided to swim Lake Annecy as a personal challenge and thought I could see if I could fundraise at the same time.   My mum was the inspiration for me in swimming Lake Annecy. I am a keen open water swimmer but to date the furthest I had swum was 5k. I decided to attempt Lake Annecy in France which is 14.5k as it is a beautiful lake in a spectacular setting. I wanted to see if I could raise some money for the association which helped my mum so much when she was suffering with the neuralgia. After 3 hrs of swimming when I wanted to give up and I was crying in the water the thought of the people who had donated inspired me to keep going. It was a huge mental challenge and proved to me that no one knows what they are capable of until you push yourself. I thoroughly enjoyed it even though it was 8 hrs of continual swimming and I would do it again in a flash. I hope the association benefits and keep up the excellent service. Many thanks Audrey”

Here are some of our recent fundraisers – thank you for all their amazing efforts and achievements:

Rhiannon Little – her brave parents undertook a zip wire challenge and raised money for TNA UK!

Member Nicola Lingley –Heath – had a very busy weekend in September, not only completing two running events but also organising an evening at her local pub with raffles etc.   Well done Nicola!

Member Sue Evans held a ponsored “Chop the Mop” event – here are the before and after photos:








Carl Pilato had an amazing adventure and raised money by reaching Everest Base Camp! 

                                                                                                                                    Anthony McGlade and his friends cycled to Paris:   




Susan Hayhow completed the Windsor half marathon!      

Sarah Vause completed her third marathon in October by running in the Chicago Marathon. “I have a personal ambition to run every Major Marathon. Chicago was my third and this time I chose to run for the TNA. Two years ago my Mum was diagnosed with TN. I confess before then I had not heard of the disease. When the condition has been at its worst for my Mum it renders her bed bound in the most excruciating pain. She continues to fight her symptoms and explore relief options. As well as raising money for this fantastic charity, I also wanted to increase awareness of the condition”.


For a full-size version of these pages, click on the links below

TNA Charity Use-final-1

TNA Charity Use-final-2