Fergus runs the Edinburgh Marathon!
Fundraising for Trigeminal Neuralgia Association UK
As the festive season unfolds, it brings opportunities for joy, reflection, and acts of kindness. This year, TNA.org.uk proudly presents our exclusive Christmas card collection, thoughtfully designed to not only convey festive greetings but also to support an essential cause. With two elegant designs, each card is a fusion of creativity and compassion, symbolising hope and unity.
How to Participate?
This Christmas, let’s extend our festivities to encompass hope, joy, and the essence of giving. Opt for TNA’s Christmas cards
For more details and to purchase, please visit www.tna.org.uk. or contact the office
“I’m thrilled to introduce you to our innovative initiative, ‘#ShowTN3Fingers,’ conceived to commemorate National TN Awareness Day on 7th October and to intensify awareness of trigeminal neuralgia.”
As we mark National TN Awareness Day on 7th October, it is imperative that we unify our voices and gestures to shed light on this debilitating condition. This campaign offers a channel to do just that.
This campaign is far more than symbolism; it’s an educational pillar:
Your participation is pivotal:
“One TN sufferer shared, ‘This campaign lets me non-verbally communicate my pain to my family and healthcare provider.'”
Often dubbed the ‘suicide disease,’ the emotional burden of TN can be severe. Our helpline and regional support groups offer a lifeline.
We invite everyone, regardless of geographic location, to be part of this initiative and thereby enrich the narrative surrounding trigeminal neuralgia. and join the National Trigeminal Neuralgia Awareness Day
‘On this International Day of Yoga, we turn our focus towards a topic that often goes unnoticed – the potential role of yoga in managing Trigeminal Neuralgia (TN). Trigeminal Neuralgia, known for causing some of the most severe pains a human can endure, affects the trigeminal nerve, leading to intense facial pain. Could yoga, a practice celebrated for promoting physical and mental harmony, offer some relief to those living with this condition?’ Aneeta Prem MBE
Trigeminal Neuralgia is a condition characterized by piercing or shock-like facial pain. It can affect anyone, irrespective of age or health status. Traditional treatment options for TN range from anticonvulsant drugs to surgical procedures. However, these treatments can bring about their own set of challenges and side effects.
Yoga, a practice dating back thousands of years, is increasingly recognized in modern medicine for its potential to manage a variety of health conditions. Yoga’s focus on deep breathing, gentle movements, and mindfulness can help individuals develop better pain management strategies.
While direct research linking yoga with TN is limited, studies illustrating yoga’s benefits for pain management in general exist. A study published in 2020 in the Journal of the American Medical Association (JAMA) demonstrated that yoga can assist with managing various chronic pain conditions 1. Additionally, a 2017 study in the Annals of Behavioral Medicine showed that yoga could reduce the impact of migraines, a neurological condition that also involves nerve pain 2.
Here are five gentle yoga practices that could potentially help individuals living with Trigeminal Neuralgia. Always remember to consult with a healthcare provider or a trained yoga instructor before starting any new practice.
Yoga techniques like Anulom Vilom (Alternate Nostril Breathing) promote calmness and reduce stress, which may lessen the perception of pain.
Savasana is a deep relaxation technique that reduces muscle tension and encourages a sense of peace.
Simple, gentle neck movements can alleviate tension and improve flexibility.
This restorative pose encourages relaxation and aids pain management by allowing gentle blood flow towards the face and brain.
Mindfulness meditation, a central aspect of yoga, can help one become more aware of their body and pain sensations, potentially aiding in better pain management.
The child’s Pose is a gentle resting pose that helps release tension in the back, shoulders, and neck. It promotes relaxation and can provide relief from facial pain associated with Trigeminal Neuralgia.
Cat-Cow Pose is a dynamic movement that involves alternating between arching the back (cat pose) and extending it (cow pose). This practice helps increase spinal flexibility and releases tension in the neck and upper back.
Forward Fold is a calming pose that stretches the entire back body, including the neck and shoulders. It promotes blood circulation and relaxation, potentially reducing facial pain.
Seated Spinal Twist is a gentle twisting pose that releases tension in the spine and stimulates the digestive system. It may alleviate discomfort in the face and jaw associated with Trigeminal Neuralgia.
Legs-up-the-Wall Pose, as mentioned earlier, is a restorative pose that allows gentle blood flow towards the face and brain. It promotes relaxation, reduces stress, and can provide relief from facial pain.
Remember, it’s important to consult with a healthcare provider or a trained yoga instructor before attempting any new yoga practice. They can guide you with modifications and ensure that the practices are suitable for your specific condition.
On this International Day of Yoga, let’s remember that yoga is more than just exercise—it’s a practice that promotes mind-body harmony, which may offer a source of comfort for those living with conditions like Trigeminal Neuralgia. While yoga can provide many benefits, it is not a substitute for traditional medical treatment of conditions like Trigeminal Neuralgia. Always listen to your body and never push into poses or practices that cause discomfort.
Understanding Trigeminal Neuralgia
Trigeminal neuralgia, also known as tic douloureux, is a neurological disorder that affects the trigeminal nerve, which is responsible for transmitting sensory information from the face to the brain. This condition is characterized by sudden and intense facial pain, often described as stabbing, electric shock-like sensations, which can be triggered by seemingly innocuous activities such as speaking, eating, or even a gentle touch.
To grasp the intricacies of TN, it’s essential to understand the trigeminal nerve’s structure and function. The trigeminal nerve is the largest cranial nerve and consists of three main branches: the ophthalmic nerve (V1), the maxillary nerve (V2), and the mandibular nerve (V3). These branches innervate various regions of the face, including the forehead, cheek, jaw, and teeth.
Compression of the TN : The most common cause of trigeminal neuralgia is believed to be the compression of the TN by nearby blood vessels, leading to irritation and dysfunction.
Nerve Damage: In some cases, damage to the trigeminal nerve due to an injury or underlying medical condition, such as multiple sclerosis, can trigger the onset of trigeminal neuralgia.
Age and Gender: Trigeminal neuralgia is more prevalent in individuals over the age of 50, and women are slightly more likely to develop the condition than men.
Trigeminal neuralgia primarily manifests as severe, sudden facial pain, typically affecting one side of the face. The pain can be triggered by everyday activities, including eating, talking, or even exposure to a light breeze. Other common symptoms include:
To diagnose TN , your healthcare professional will perform a comprehensive evaluation, including a thorough medical history review, physical examination, and, in some cases, imaging tests such as magnetic resonance imaging (MRI) or computed tomography (CT) scans. These tests help rule out underlying causes and pinpoint any abnormalities or compression affecting the trigeminal nerve.
Managing trigeminal neuralgia involves a multidimensional approach tailored to each individual’s specific needs. The primary goals of treatment are to alleviate pain, reduce the frequency and intensity of trigeminal neuralgia episodes, and improve the overall quality of life. Treatment options may include:
Medications: Anticonvulsant medications, such as carbamazepine and gabapentin, are commonly prescribed to help control pain and manage trigeminal neuralgia symptoms.
Nerve Blocks: Injecting an anaesthetic or a corticosteroid near the affected trigeminal nerve can provide temporary pain relief and interrupt the nerve signals responsible for triggering trigeminal neuralgia episodes.
Surgical Interventions: In more severe cases or when conservative measures fail to provide adequate relief, surgical interventions may be considered. Procedures such as microvascular decompression (MVD), where the compressing blood vessel is repositioned, or radiosurgery, such as gamma knife radiosurgery, can help alleviate symptoms and prevent future episodes.
Alternative Therapies: Complementary approaches, including acupuncture, biofeedback, and transcutaneous electrical nerve stimulation (TENS), may offer additional pain relief and improve overall well-being. These therapies can be used in conjunction with medical treatments to provide a holistic approach to managing trigeminal neuralgia.
Trigeminal neuralgia can significantly impact a person’s quality of life, leading to physical, emotional, and social challenges. However, with proper management and support, individuals with trigeminal neuralgia can find ways to cope and improve their well-being. Here are some strategies that may help:
Pain Management Techniques: Exploring relaxation techniques, such as deep breathing exercises or meditation, can help reduce stress and alleviate pain. Applying heat or cold packs to the affected area may also provide temporary relief.
Support Networks: Joining our regional support groups or our helpline can be beneficial for individuals living with TN. Connecting with others who share similar experiences can provide emotional support, information exchange, and a sense of belonging.
Adopting a Healthy Lifestyle: Maintaining a balanced diet, engaging in regular physical activity, and getting sufficient sleep can contribute to overall well-being and help manage trigeminal neuralgia symptoms.
In conclusion, TN is a complex condition characterized by excruciating facial pain. Through our comprehensive guide, we aimed to provide you with a detailed understanding of this condition, including its causes, symptoms, diagnosis, and treatment options. By consistently delivering valuable, well-researched content, we strive to outrank other websites and become your go-to source for reliable information on trigeminal neuralgia. Remember, if you or a loved one are experiencing facial pain or suspect trigeminal neuralgia, it is crucial to consult with a healthcare professional for an accurate diagnosis and personalized treatment plan.
Are you excited about celebrating King’s Coronation with your friends, family, and neighbours? How about adding a charitable twist to your festivities by turning them into an opportunity to raise awareness and funds?
Before delving into the specific ideas, it’s essential to introduce the concept of fundraising and why it’s crucial. Explaining how charitable donations and contributions can help make a difference in people’s lives can encourage your guests to get involved and contribute to the cause.
Selecting a cause that aligns with your values and resonates with your guests is crucial. Supports TNA health, support and research.
Instead of bringing gifts to the celebration, guests can donate to TNA UK. Encouraging your guests to contribute to the cause instead of bringing gifts can make a significant impact on the success of the fundraiser.
What’s a celebration without cake and pastries? Why not turn your love for cakes and bakes into an opportunity to raise funds? You can set up a cake and bake sale booth at the celebration and invite your guests to indulge in some sweet treats.
A charity auction can add a touch of excitement and thrill to the celebration while also raising funds for charity. Guests can bid on various items, such as artwork, jewellery, or collectables, and the proceeds can go to the TNA-UK.
A raffle can be an excellent way to raise funds for charity while also providing guests with a chance to win exciting prizes. You can sell raffle tickets to guests, and the winner can take home a coveted prize while also contributing to the cause.
Adding games and activities to the celebration can make it more engaging and interactive while also raising funds for TNA. You can set up a carnival-style game booth or host a charity sports tournament where participants can donate to the cause to participate.
Leveraging the power of social media can help raise awareness about the cause and encourage more people to contribute to the fundraiser. You can create a social media campaign and share posts, stories, and updates about the fundraiser,
Donation matching can help double the impact of the fundraiser. You can reach out to corporate sponsors or high-net-worth individuals and request them to match the donations made by your guests.
Providing your guests with opportunities to volunteer for TNA UK. This can help deepen their engagement and commitment to the cause. You can share information about volunteering opportunities and encourage your guests to get involved.
Thanking your guests for their contributions and support can help show your appreciation and also encourage them to participate in future fundraising events. Sending personalised thank you notes or messages to each guest This can help make them feel valued and connected to the cause.
Keeping track of the funds raised and the impact they are making can help motivate your guests and encourage them to contribute more. Sharing updates and progress reports on the fundraiser and the cause can help demonstrate the impact of their contributions
Supporting TN and Facial Pain Sufferers TNA London Marathon Runner.
A Call to Donate to TNA London Marathon Runner Honor of Gerwyn Tumelty’s London Marathon Run.
Trigeminal Neuralgia (TN), also known as the “suicide disease,” is a debilitating condition characterized by severe facial pain that can be triggered by even the slightest touch or movement. It affects the trigeminal nerve. Which is responsible for transmitting sensory information from the face to the brain. TN can be excruciatingly painful. Often described as sharp, stabbing, or electric shock-like sensations that can last for seconds to minutes and can have a profound impact on a person’s quality of life.
Gerwyn Tumelty, a brave individual who suffered from TN from 2017 to 2019, has remarkably recovered after undergoing microvascular decompression surgery MVD in 2019.
Gerwyn is now running the London Marathon, one of the most gruelling races in the world. This incredible feat deserves recognition and support from the wider public. Not only for Gerwyn’s personal achievement but also to raise awareness and funds for TN and facial pain sufferers.
The London Marathon is no ordinary race. It demands physical endurance, mental strength, and unwavering determination. For someone who has experienced the excruciating pain of TN.
The wind in the air, a simple touch, or a slight movement can trigger unbearable agony. Many TN and facial pain sufferers cannot step outside, let alone participate in a marathon. Gerwyn’s dedication to overcoming his pain and completing this challenging race is truly inspiring.
TNA London Marathon Runner also needs to highlight the importance of supporting organizations like TNA UK.
TNA UK is a charity that provides invaluable support to those affected by TN and facial pain, offering information, resources, and advocacy for patients, as well as funding research and raising awareness about this debilitating condition.
Donations to TNA UK go directly towards supporting individuals like Gerwyn and other TN sufferers, coping with the physical and emotional toll of TN, and raising awareness about this often misunderstood condition.
Donating in honour of Gerwyn’s London Marathon run is an opportunity to make a real difference in the lives of TN and facial pain sufferers. Your donation can provide hope and support to those struggling with this chronic pain condition,. Helping them find relief. Connect with others who understand their experiences, and raise awareness about TN in the wider public. Every contribution, no matter how big or small, can have a significant impact and make a meaningful difference.
and want to support TN and facial pain sufferers. I encourage you to donate to TNA UK. Your donation can help provide vital support and resources. To those affected by TN and contribute to ongoing research efforts to find better treatments and ultimately a cure for this debilitating condition.
Your generosity can make a real difference in the lives of individuals who have faced immense challenges but continue to persevere.
Let us come together as a community and support Gerwyn’s London Marathon run, and the broader cause of TN and facial pain awareness and support.
Cn bring hope and relief to those who are suffering and contribute to a brighter future for TN sufferers.
Please consider donating to TNA UK today and join us in honouring Gerwyn’s incredible journey and supporting those who are affected by this devastating condition.
Together, we can make a meaningful impact and improve the lives of TN and facial pain sufferers.
If you’re in London on marathon day, consider joining the crowds along the route and cheering Gerwyn and other runners on. Your enthusiastic support can boost their morale and help them stay motivated throughout the race. Even if you’re not in London, you can send messages of encouragement through social media or other means to show your support and motivate Gerwyn to keep pushing forward.
Like Gerwyn Tumelty goes beyond just donating money. Cheering him on, donating to his fundraising page, sharing his story, offering practical help, and providing emotional support are all valuable ways to show your encouragement and help him reach his goal. By supporting Gerwyn’s London Marathon run and raising awareness for TN and facial pain. You can contribute to a larger cause by helping those who are suffering from this debilitating condition.
Let’s come together to support any runners and make a meaningful impact in the lives of TN and facial pain sufferers
Fundraising for Trigeminal Neuralgia Association UK
“Last October, my grandma Margaret Parkinson died, a few days after her 92nd birthday. I loved her very much.
She was a wonderful grandma and a very active woman for most of her life. She loved going for long walks, particularly with her friends and family, and particularly in her native Yorkshire.
For the last few years of her life, though, she suffered from trigeminal neuralgia. aAchronic illness that affects nerves in the face, causing sharp, debilitating pain.
The Trigeminal Neuralgia Association is a charity dedicated to supporting those with trigeminal neuralgia, raising awareness of the condition, and working towards solutions to it.
On May 28th, I am going to run the Edinburgh Marathon in memory of my grandma and to raise money for the Trigeminal Neuralgia Association.
This will be my first – and probably last! – marathon, and I’d be very grateful for any donations you can make to this worthwhile cause.
Remember, every contribution, big or small, makes a difference in supporting TNA’s cause and helping those suffering from Trigeminal Neuralgia and Facial Pain.
TNA London Marathon Runner’s participation in the London Marathon is significant. It raises awareness about these conditions and the challenges faced by individuals who suffer from them. Running a marathon requires immense physical and mental endurance.
As does Fergus Morgan running the Edinburgh Marathon!
The TNA runner’s commitment to completing the race despite the challenges is commendable. It also highlights the urgency to support fundraising efforts for TNA. As the association relies on donations to continue providing essential services to its members.
As the world continues to grapple with the COVID-19 pandemic, many people are experiencing a variety of symptoms, including fever, cough, and difficulty breathing. However, for those who suffer from trigeminal neuralgia, the pain caused by the virus can be even more unbearable. In this article, we will discuss the impact of COVID-19 on trigeminal neuralgia and offer some tips on how to alleviate the pain.
The COVID-19 pandemic has affected millions of people worldwide, and those who suffer from trigeminal neuralgia are not immune to its impact. In this article, we will discuss the unique challenges faced by those with trigeminal neuralgia during the pandemic and offer some solutions to ease the pain.
Trigeminal neuralgia is a chronic pain condition that affects the trigeminal nerve, which is responsible for sending sensory information from the face to the brain. It causes sudden, intense facial pain that can be triggered by simple activities like brushing teeth or eating. The pain can be debilitating, and it can significantly impact a person’s quality of life.
Three years to this day after the world was locked down due to COVID-19, the virus has entered the Prem household. We have been careful to the point of paranoia, but today, a very faint line appeared on my COVID-19 test.
Every bone in my body is hurting, I’m shaking, and I have a temperature of 101.6. Having COVID-19 or suspected COVID-19 is bad enough, but every time I blow my nose or sneeze or cough, it seems to hurt and general neuralgia even more.
I’m on my knees in agony, screaming with pain. “Can anything be done to ease the pain?” I asked my GP in vain, and I’m told I should take paracetamol and ibuprofen. “There’s nothing else I can do for you,” they say. While these medications may be helping with the temperature and shakes, they certainly aren’t helping with the trigeminal neuralgia and facial pain I’m going through.
As someone who lives with trigeminal neuralgia and is also the CEO of Trigeminal Neuralgia Association UK, Aneeta Prem understands the impact that COVID-19 can have on those with the condition.
For people with trigeminal neuralgia, COVID-19 can be particularly challenging. The virus can cause inflammation and damage to nerves, which can exacerbate the symptoms of trigeminal neuralgia. Additionally, the pain and discomfort associated with COVID-19 can make it more difficult to manage trigeminal neuralgia symptoms.
As Aneeta Prem explains, “For those living with chronic pain conditions like trigeminal neuralgia, the COVID-19 pandemic has been particularly difficult. The pain and discomfort associated with COVID-19 can exacerbate existing symptoms and make it more challenging to manage the condition. It’s important for those with trigeminal neuralgia to take extra precautions to avoid getting sick.”
COVID-19 is a highly infectious disease that affects the respiratory system. However, many people with COVID-19 also experience neurological symptoms, including headaches, dizziness, and confusion. For those with trigeminal neuralgia, the virus can exacerbate the pain and make it even more challenging to manage.
When a person contracts COVID-19, the virus attacks the body’s immune system, causing inflammation and swelling. Inflammation in the facial nerves can lead to an increase in trigeminal neuralgia symptoms, including facial pain, tingling, and numbness. Additionally, the coughing and sneezing associated with COVID-19 can aggravate the condition, leading to increased pain and discomfort.
Managing trigeminal neuralgia during the COVID-19 pandemic can be challenging, but there are some things that people can do to alleviate the pain. Here are some tips:
If you are taking medications for trigeminal neuralgia, make sure you continue to take them as prescribed. Do not stop taking your medications unless instructed to do so by your doctor.
Practicing good hygiene can help prevent the spread of COVID-19 and also reduce the risk of aggravating trigeminal neuralgia symptoms. Wash your hands frequently, wear a mask when in public, and avoid touching your face.
Staying active can help reduce stress and improve overall health, which can help alleviate trigeminal neuralgia symptoms. Consider low-impact exercises like yoga or walking.
Applying heat or cold therapy to the affected area can help alleviate pain and reduce inflammation. Try using a heating pad or a cold pack to see which works best for you.
If your trigeminal neuralgia symptoms are severe or you are experiencing new symptoms, seek medical attention immediately. Your doctor may be able to provide additional treatments to help manage your symptoms.
The COVID-19 pandemic has presented unique challenges for those with trigeminal neuralgia. However, by taking the necessary precautions and following the tips above, you can help manage your symptoms and reduce the impact of the virus on your condition. Remember to stay vigilant and seek medical attention if needed.
February 28th marks Rare Disease Day, where more than 600 events worldwide are organized to raise awareness about rare diseases, including Trigeminal Neuralgia. Trigeminal Neuralgia is a rare and excruciatingly painful disease that affects approximately 1 in every 15,000 people.
marks living with a Rare Disease and Trigeminal Neuralgia:
Rare Disease Day 2023 for those with Trigeminal Neuralgia, is a rare neurological disorder. That causes sudden and severe facial pain. This excruciatingly painful condition affects approximately 1 in every 15,000 people worldwide, and yet many people have never even heard of it.
We at TNA Uk are here to shed light on this debilitating disease and the challenges that come with living with a rare disease.
From the impact on daily life to the challenges in diagnosis and treatment, Trigeminal Neuralgia presents a painful reality for those who live with it.
Trigeminal Neuralgia causes sudden and intense facial pain, which is often described as an electric shock or stabbing sensation. These attacks can last from a few seconds to several minutes and can occur multiple times a day. Unfortunately, even everyday activities such as chewing, talking, or even a slight breeze on the face can trigger an attack.
Living with Trigeminal Neuralgia can be incredibly difficult. The pain can be so severe that patients may avoid basic self-care routines such as brushing their teeth or shaving. The unpredictable nature of the disease can also lead to depression, anxiety, and social isolation. Patients may struggle to maintain relationships or participate in social activities, which can lead to feelings of loneliness and hopelessness.
Diagnosing Trigeminal Neuralgia can be challenging, as there is no specific test for the disease. Patients may undergo a series of tests to rule out other conditions, and a definitive diagnosis may take months or even years to obtain. This can be incredibly frustrating for patients who are experiencing intense pain and are seeking answers and relief.
Treatment options for Trigeminal Neuralgia include medication, surgery, or a combination of both. Medications such as anticonvulsants or muscle relaxants can help reduce the frequency and intensity of attacks, but they may also cause side effects such as dizziness, drowsiness, and nausea. Surgery, such as Microvascular Decompression or Gamma Knife Radiosurgery, can provide long-term relief but carries its own risks.
Trigeminal Neuralgia Association UK is a charity that provides support and information to those affected by Trigeminal Neuralgia. They also work to raise awareness of the disease and fund research into finding better treatments and, ultimately, a cure.
is incredibly important to support their vital work. Donations can help to fund research into better treatments and support services for patients and their families. Fundraising events such as sponsored walks or runs, charity auctions, or online campaigns can help to raise awareness of the disease and the challenges faced by those who live with it.
Rare Disease Day 2023 Trigeminal Neuralgia is a rare and debilitating disease that can significantly impact a person’s quality of life. From the challenges in diagnosis and treatment to the impact on daily life and emotional well-being, living with Trigeminal Neuralgia presents a painful reality for those who are affected. It is vital that we continue to raise awareness of the disease and support organizations such as Trigeminal Neuralgia Association UK in their mission to improve the lives of those affected by this condition.
Trigeminal Neuralgia Conference in January 2023 was a life-changing event for Trigeminal Neuralgia (TN) and facial pain sufferers. This conference brought together renowned experts in the field of TN. Providing invaluable insights into the latest developments in treatment and management. If you suffer from TN, the information presented at this conference is not to be missed.
In this article, we’ll delve deeper into the conference and highlight the practical solutions for TN pain management. The empowering experience for attendees, and the commitment of TNA to expand its focus to include facial pain.
The conference was expertly chaired by Aneeta Prem MBE and the joint chairs of the medical advisory board, Dr Lambru and Mr Barazi. The event was well-organized, and delegates were treated to an inspiring and informative day of presentations. The quality of the speakers was impressive, and they provided practical solutions for TN pain management.
Dr Lambru and Mr. Barazi, renowned experts in the field of TN, offered invaluable insights into managing TN pain. Linda Fisher, a Chartered Psychologist, provided practical tips on how to cope with the emotional impact of TN, while Mark Weatherall, a Consultant Neurologist, gave an informative presentation on the neurological treatment of TN.
The conference provided practical solutions for TN pain management, leaving attendees feeling better equipped to manage their TN pain. As one delegate put it, “The information presented at the TNA conference has changed my life. I feel better equipped to manage my TN pain, and I’m grateful for the support I received from other attendees.”
The TNA conference was an empowering experience for TN sufferers. Attendees learned from leading experts in the field. Delegates felt inspired to take control of their pain. As another delegate said, “The TNA conference was an empowering experience. The knowledge and expertise displayed by the speakers were impressive. I left feeling more informed and better equipped to manage my TN pain.”
In addition to the wonderful insights provided by the TNA conference attendees were thrilled to hear that the Trigeminal Neuralgia Association (TNA) has expanded its focus to include facial pain as part of its work. This decision was met with great enthusiasm, as it recognizes the wide range of pain experiences that individuals with facial pain endure.
Furthermore, four individuals who suffer from TN and facial pain were delighted that research is at the heart of what TNA wants to do. They recognized that research is essential for discovering new treatments and ultimately finding a cure for TN and facial pain. This focus on research shows that TNA is dedicated to providing the most up-to-date and effective treatment options for its members.
Attendees were also pleased to learn that TNA will continue to support its members with its helpline and regional meetings. The TNA helpline is a vital resource for those who need support and advice.
The regional meetings provide an opportunity for members to meet others who are going through similar experiences, share stories, and exchange practical tips on how to manage their pain.
In summary, the TNA conference was a great success, and attendees left feeling empowered, informed, and supported. The decision to include facial pain as part of TNA’s work, the focus on research the continued support through the helpline and regional meetings show that TNA is committed to improving the lives of individuals with TN and facial pain.
JH “found the TNA conference to be a life-changing experience. They were impressed by the organization and the quality of the speakers. Who provided insightful information on managing TN pain. Specifically mentioned Aneeta Prem, CEO, as a standout speaker who inspired them with her knowledge and passion for helping those with TN.
DS was grateful for the opportunity to learn from experts in the field such as Dr Lambru and Mr Barazi. They are both ‘Simply the Best”
They found their presentations to be well-structured and informative, providing them with invaluable insights into managing their TN pain.
DS was inspired by David Martin’s presentation on the role of advocacy in improving the lives of those with TN. As CEO of MS Trust and Chair of the Neurological Alliance, Martin offered a unique perspective on the challenges faced by TN sufferers and how they can be overcome through advocacy and support.
SP found Linda Fisher’s presentation on psychosocial support for TN sufferers to be particularly insightful. As a Chartered Psychologist, Fisher offered practical tips on how to cope with the emotional impact of TN, as well as the importance of seeking support from friends, family, and professionals.
TL was impressed by the expertise of Uke Cascarini, a Consultant Maxillo-Facial Surgeon. Cascarini provided detailed information on surgical options for TN, including the latest advancements in the field. The delegate found the presentation to be informative and helpful in understanding their treatment options.
LZ stated appreciated Mark Weatherall’s insights into the neurological treatment of TN. As a Consultant Neurologist, Weatherall provided a comprehensive overview of the various treatments available, including both surgical and non-surgical options. LZ found the presentation to be both educational and inspiring.
“Compassionate Support from TNA Speakers” “I was touched by the compassionate support they received from the TNA speakers. They appreciated the empathy and understanding displayed by the experts in the field and felt that their struggles with TN were being taken seriously.”
“Insightful Discussions on Coping Strategies”: “appreciated the insightful discussions on coping strategies for TN sufferers. They found the presentations on psychosocial support and mindfulness to be particularly helpful in managing their pain and improving their quality of life.”
“Inspiring Stories from Other TN Sufferers” ‘I was inspired by the stories shared by other TN sufferers at the TNA conference. They appreciated the opportunity to connect with others who understand the challenges they face, and felt a sense of community and support as a result”.
“Outstanding Organization and Planning”: was impressed by the outstanding organization and planning of the TNA conference. They appreciated the seamless flow of the event and the attention to detail and felt that their experience was greatly enhanced as a result.”
As we approach the New Year my thoughts turn to New Year’s Resolutions, and choosing some that will be achievable and sustainable for me! We are launching the One Million Steps for TNA so that we can all focus on trying to become more active and fitter throughout the next year, and I hope that you might like to join me in that challenge.
I know we can’t all venture out, so racking up steps at home or in a shopping centre counts towards your goal. You will need a smartphone with a step-counting app or a pedometer. I am going to start with a target of 1,000 steps per day and try to work gradually towards 10,000 per day. I really do hope that friends and family might sponsor this activity and perhaps even join in too!
Once you have your sponsors and have completed your walk please donate to our gift aid Here and show your commitment to those with Trigeminal Neuralgia.