Dear Members and Friends,
I hope you’re all doing well. Our recent webinar with Dr. Mark Weatherall, focused on the history of trigeminal neuralgia, has sparked a lot of positive discussions—”the best webinar yet, thank you TNA.” With Easter on the horizon, it’s the perfect opportunity to reflect on our achievements and look towards the future.
Despite the financial hurdles impacting donations across the charity sector, our commitment to supporting those affected by TN and facial pain remains. Your continued support has been crucial in sustaining our valued services:
Dedicated Helplines and E-Helpline: Providing support and guidance to ensure no one faces TN alone.
Freephone Helpline Number: Making our support accessible to everyone, irrespective of financial circumstances.
Regional Support Meetings: Facilitating spaces for members to share experiences and advice, thereby fostering community and friendship.
National Webinars with Experts: Offering the latest insights and treatments from leading TN experts.
Friendship Line: Available for those needing conversation or support during tough times.
Volunteer Training Programs: Enhancing the level of support provided by our dedicated volunteers through targeted training.
Some of the feedback we have received:
“Reaching out to the TNA helpline provided clarity and support through difficult times.”
“The Regional Support meetings have been a lifeline, connecting me with people who truly understand.”
“TNA webinars have equipped me with the knowledge and confidence to manage my condition effectively.”
“Receiving a donated membership allowed me access to essential resources I couldn’t otherwise afford, significantly impacting my journey with TN.”
T4TN
‘Tea for TNA’ has become an integral part of our charity, showcasing the significant impact we can have when united. These events are essential not only for raising funds but also for increasing awareness about trigeminal neuralgia and facial pain, making new friendships. Making the most of the lighter days, If you’re considering hosting your own ‘Tea for TNA’, we warmly invite you to reach out for a pack. Whether planning a large event or a small gathering with friends, family, or colleagues, your contribution is invaluable. We’ve also established a Just Giving page to support your ‘Tea for TNA’ efforts, and we’re ready to provide you with a pack for assistance.
Easter
Make this Easter more fun! Buy a digital hot cross bun or cupcake and share in the joy of giving. This new and fun way of celebrating Easter adds special meaning to the holiday. Join in and make a difference!
Easy Fundraising
To boost our fundraising efforts and ensure the continuation of these essential services, we’ve introduced a straightforward method for you to contribute through your regular online shopping. By registering with Easy Fundraising, your purchases from over 4,000 retailers can support TNA at no additional cost. This initiative not only strengthens our community but also supports our mission.
Join Kelly Hayes as she embarks on an exciting journey to raise funds for Trigeminal Neuralgia!
She’ll be making her strides count at the Principality Cardiff Half Marathon on October 6, 2024. You can stay in tune with her journey by following her JustGiving page. C’mon locals, let’s get out there and cheer her on for this great cause. We can’t wait to see you there! We are also looking for a volunteer Regional Support group leader for this area so this could be your chance to organise a day out and spur Kelly along.
Fundraising ideas
Many of you have requested some ideas for fundraising that doesn’t involve running a marathon or climbing a mountain. Here are some ways to help raise funds for TNA:
Sponsor a Day of Silence: Challenge yourself to a day of silence and ask friends and family to sponsor you. This can be a powerful way to raise awareness and funds. It requires very little in terms of physical exertion but demands lots of willpower.
Sponsored Read-a-Thon: Commit to reading a set number of books over a certain period and invite your network to sponsor your endeavour. This initiative combines the joy of reading with the opportunity to support a worthy cause, and it’s perfect for book lovers seeking a meaningful challenge.
Art Creation Marathon: Dedicate a day or a weekend to creating art, whether it’s painting, drawing, or crafting, and ask for sponsorships. You could even offer to create personalised artwork for higher donations. It’s a great way to showcase your creativity while supporting TNA.
Knit-a-Thon: For those who enjoy knitting or crochet, pledge to knit a certain number of items, like scarves or blankets, within a specified timeframe. Seek sponsors for each piece you commit to creating. The finished products can also be donated to those in need, doubling the impact of your effort.
Digital Detox Challenge: Encourage sponsors by committing to a 24-hour digital detox. This means no phones, no social media, no computers. It’s a refreshing challenge that emphasizes the importance of disconnecting from digital devices while raising funds for a cause close to your heart.
Puzzle Completion Contest: Set a goal to complete a series of puzzles – be it jigsaw puzzles, crossword puzzles, or Sudoku – and ask for sponsorship per puzzle or for the entire challenge.
We hope you find these ideas inspiring and consider taking on one (or more!) of these challenges to support TNA.
Thank you
Thank you to the large number of volunteers who have come forward for the Neoma Libra trial. We all know how crucial this is to all of us.
This Easter, facing the increased demand for donated memberships and ongoing economic pressures, your support is more critical than ever.
Thank you for your unwavering commitment and support. Together, we are making a significant difference in the lives of those affected by trigeminal neuralgia and facial pain, offering hope and assistance when it’s most needed. A huge thank you for those who donate regularly through payroll giving and our monthly donors.
Wishing you and your loved ones a Happy Easter,
Aneeta
Aneeta Prem MBE
CEO TNA UK
