National Volunteers’ Week

Dear Volunteers,

Thank you to All the Volunteers

As we celebrate National Volunteers’ Week, I want to extend my thanks to all the incredible volunteers at the Trigeminal Neuralgia Association UK (TNA UK). Many of you are not only dedicated volunteers but also brave individuals living with trigeminal neuralgia (TN) yourselves. Your commitment and resilience are truly inspiring.

Helpline and E-Helpline Volunteers

A special thank you goes to those who tirelessly staff our helplines and e-helplines. You offer crucial support and information to those in need, providing a lifeline to many and ensuring that no one has to face TN alone.

Regional Leaders

Our regional leaders deserve recognition for their outstanding work. You not only run regional meetings but also provide ongoing support to members in your areas. Your dedication to fostering a supportive community is invaluable.

Friendship Line Volunteers

A huge thank you to those who have manned the friendship line. Your compassion and willingness to listen have made a significant impact. In many cases, you have saved lives.

Medical Advisory Board

We also owe a debt of gratitude to our brilliant Medical Advisory Board. Your expertise and guidance are instrumental in our mission. You help us navigate the complexities of TN with confidence and clarity.

Trustees

Lastly, I want to thank our trustees for their support and dedication. You improve the lives of those with facial pain and trigeminal neuralgia.

Call for Volunteers

Volunteering is at the heart of TNA UK. We are always in need of more passionate individuals to join us. If you are interested in making a difference, please get in touch. We need you to help us continue providing vital support to those affected by TN. https://www.tna.org.uk/contact-us/

Volunteers' Week

Final Thanks

Thank you once again to all our volunteers for your incredible contributions. You are the backbone of our organisation, and we are deeply grateful for everything you do.

Warm regards,

Aneeta

Aneeta Prem MBE JP
CEO, Trigeminal Neuralgia Association UK

National Trigeminal Neuralgia Awareness Day

 

National Trigeminal Neuralgia Awareness Day

“#ShowTN3Fingers”: A Revolutionary Initiative for National Trigeminal Neuralgia (TN) Awareness Day by Aneeta Prem MBE

 


 Introduction by Aneeta Prem MBE

“I’m thrilled to introduce you to our innovative initiative, ‘#ShowTN3Fingers,’ conceived to commemorate National TN Awareness Day on 7th October and to intensify awareness of trigeminal neuralgia.”


Why ‘#ShowTN3Fingers’ is Imperative for National TN Awareness Day

As we mark National TN Awareness Day on 7th October, it is imperative that we unify our voices and gestures to shed light on this debilitating condition. This campaign offers a channel to do just that.

Show TN 3 Fingers Poster Aneeta Prem


The Scientific Insight: ‘#ShowTN3Fingers’aneeta prem show tn3 fingers

This campaign is far more than symbolism; it’s an educational pillar:

ShowTN3Fingers
ShowTN3Fingers Kirsten Cooper

A Special Invitation to Medical Professionals

Your participation is pivotal:


The Impact: A Testimony

“One TN sufferer shared, ‘This campaign lets me non-verbally communicate my pain to my family and healthcare provider.'”

ShowTN3Fingers
ShowTN3Fingers Lorraine Woolley MBE

Addressing the Emotional Reality: Trigeminal Neuralgia

Often dubbed the ‘suicide disease,’ the emotional burden of TN can be severe. Our helpline and regional support groups offer a lifeline.


How to Engage and Make a Difference

National Trigeminal Neuralgia Awareness Day

  1. Capture: Snap a selfie or video.
  2. Narrate: Include your personal reason.
  3. Share and Hashtag: Use #ShowTN3Fingers. #faceofTN

    Rachael '#Showingtn3fingers"l National Trigeminal Neuralgia Awareness Day
    Rachael ‘#Showingtn3fingers”l National Trigeminal Neuralgia Awareness Day
  4. Donate: Contributions fuel our helpline and educational outreach.
Showtn3fingers
Showtn3fingers Deborah Edwards

A Worldwide Call to Act

We invite everyone, regardless of geographic location, to be part of this initiative and thereby enrich the narrative surrounding trigeminal neuralgia. and join the National Trigeminal Neuralgia Awareness Day

Trigeminal Neuralgia Hope

Trigeminal Neuralgia Hope

 

Trigeminal Neuralgia (TN), a neurological condition causing excruciating facial pain, leaves those afflicted with feelings of isolation and despair. However, amidst this, there is hope – the Trigeminal Neuralgia Association (TNA). The charity has been a lifeline for individuals battling TN, providing a supportive and nurturing environment.

Understanding Trigeminal Neuralgia: A Journey of Pain

Trigeminal Neuralgia is characterised by sudden, stabbing facial pain, triggered by seemingly innocent actions like chewing or talking. The intensity of this pain can be overwhelming, leading to immense distress for those experiencing it. It is a rare condition that affects one’s quality of life, leaving individuals in search of understanding and support.

The Trigeminal Neuralgia Association (TNA)

In the midst of this, the Trigeminal Neuralgia Association (TNA) is committed to supporting those affected by TN and face pain.

We provide vital resources, raising awareness, and creating a sense of community among patients, caregivers, and medical professionals.

Transformative Stories of Resilience

Five members   who have found help and strength through TNA:

  1. E.L., a resilient TN patient, once felt utterly alone in her battle against the condition. She recalls, “The pain was isolating, but when I discovered TNA’s supportive community, I found a lifeline. The helpline connected me with others who truly understood my struggles. Now, I feel like I belong.”
  2. A.J., a strong advocate for regional support groups, recognized the importance of face-to-face interactions. He says, “Meeting in person enhances empathy and understanding among TN patients. Through regional support groups, we share experiences and coping strategies, fostering unity among our members.”
  3. M.L., a courageous TN patient, shares how TNA has been a lifeline during her saddest moments. She says, “TNA provided me with coping mechanisms, resources, and most importantly, a support network that helped me endure the pain. With their help, I found strength and resilience.”
  4. S.M., an enthusiastic member of TNA, cherishes the joy of being part of a compassionate community. She shares, “TNA’s gatherings and virtual events offer a sense of belonging and a network of friends who offer unwavering support. Community engagement is a powerful tool for healing.”
  5. J.T., a compassionate individual who witnessed her loved one’s struggle with TN, decided to make a difference. She emphasises, “Supporting each other in our TN journey is crucial. TNA’s regional support groups have been a source of comfort and understanding. Together, we find hope in the face of pain.”
The Power of Community: A Journey Towards Healing

TNA’s transformative power lies in its ability to foster hope and resilience among those affected by trigeminal neuralgia. By providing empathy, education, and support, the organization has contributed to improved patient care and reduced feelings of isolation. The stigma surrounding TN has also been diminished, encouraging individuals to seek help without hesitation.

Conclusion: Embracing the Light of TNA

Trigeminal Neuralgia can cast a shadow of pain and despair over its victims. However, the transformative power of community, exemplified by the Trigeminal Neuralgia Association (TNA), offers hope. E.L., A.J., M.L., S.M., and J.T.’s stories are testaments to the profound impact TNA has had on those battling TN. By providing support, advocacy, and camaraderie, TNA has become a beacon of light, guiding individuals towards a journey of healing and hope.

FAQs

  1. What is Trigeminal Neuralgia? Trigeminal Neuralgia is a neurological condition causing intense facial pain, triggered by everyday actions like chewing or talking.
  2. How can I get involved with TNA? You can support TNA by becoming a member, volunteering, or contributing to their initiatives.
  3. Are there effective treatments for Trigeminal Neuralgia? Treatment options include medications, surgical procedures, and alternative therapies, though effectiveness varies among individuals.
  4. Does TNA offer resources for caregivers? Yes, TNA provides resources and support for patients and caregivers, helping them navigate the challenges of Trigeminal Neuralgia.
  5. Can joining TNA’s community make a difference? Absolutely! The supportive and compassionate community within TNA can make a profound difference in the lives of those struggling with TN.