24th Nov 2022

The pain is most felt on one side of the face (unilateral) and usually in the cheek or lower jaw. There may also be pain inside the mouth and often it can feel as if it is coming from one or more teeth, hence many people seek the help of their dentist initially and some may undergo unnecessary dental treatment before getting a correct diagnosis. In other instances, pain can be felt on the entire side of the face or, occasionally, just around the eye and forehead. TN tends to affect the right side of the face more than the left side. Very rarely, it can occur on both sides (this is known as bilateral) but it is rare to have acute pain on both sides at the same time.

20th November 2022

Dear Friends and Members,

I hope you are well and able to keep warm.

TNA UK AGM and National Conference.
14 January 2023. Copthorne Tara High Street Kensington, London.

The decision, made by the trustees, to postpone our event was difficult but was necessitated by the announcement of a rail strike scheduled to take place on our original date, the 26th of November 2022.
This meant that most people would not be able to get the train to the national conference and AGM. We are grateful for your understanding and now all the ticket holders have been informed of the new date.

The charity commission has supported the decision to postpone the event as it is in the best interest of the members.

There are a few tickets available and we would love to see you if you are able to attend.

Registration for the AGM   will be from 9 am and refreshments will be available. Please register your interest even if you are only attending for the AGM so we can cater for everyone attending. The AGM will  lead directly into the TNA National Conference;
Our speakers will be neurosurgeons, neurologists, and dentists-all leading experts in the field of   Trigeminal Neuralgia.

I look forward to seeing you at the TNA National Conference and AGM on 14 January 2023.

Volunteering for TNA 
On the 13th of January 2023, we are holding a training day for our helpline volunteers and Regional Support leaders.
Volunteering can make a real difference in your own life and the lives of people suffering from TN Face pain. There are numerous ways to get involved. If you would like to volunteer for TNA in either of these roles, please get in touch with us so that we can book you a place on the day.
Alternatively,  let us know what time and skills you can give. so that we can match people up with their need.
Contact [email protected]

Befriending Helpline 
I am very proud to announce our new Befriending service.
If you are feeling isolated, as having TN can be incredibly lonely for many of us,
being able to talk to the same person regularly to build a rapport has been found too. Be helpful.
If you would like to use this service, please get in touch.  The contact details are below.

Contact

0800 999 1899 Option 1

With warmest regards,
In friendship

Aneeta

TNA National Conference and AGM

TNA National Conference and AGM

 

14th of January 2023 Is the new date for the TNA national conference and AGM, It will take place at Copthorne Tara High Street Kensington

TNA National Conference Details

The registration will be from 9 am and refreshments will be available. This will then go straight into the TNA National Conference;

Trigeminal Neuralgia Conference 

14th January 2023, High Street Kensington London

 

I am immensely looking forward to our annual TNA conference on 14 January 2023. We have managed to secure the leading experts in their fields who have confirmed their attendance at the conference.

I am looking forward to meeting those of you who can attend on the day.

 

Timetable for Conference

Introduction Aneeta Prem, CEO

Presentation on the new Chairs of the Medical Advisory Board presenting their visions for TNA,  Giorgio Lambru and Mr Sinan Barazi.

Dental causes of facial pain Francis O’Neill, Consultant in Oral Surgery

Trigeminal Neuralgia and Multiple Sclerosis David Martin, CEO of MS Trust and Chair of the Neurological Alliance

Trigeminal neuralgia diagnosis and management Giorgio Lambru, Consultant Neurologist

Surgical management of trigeminal neuralgia Sinan Barazi, Consultant Neurosurgeon

Psychological treatment of facial pain Linda Fisher, Chartered Psychologist

Patient panel

Temporo-mandibular joint disorders and facial pain Luke Cascarini, Consultant Maxillo-Facial surgeon

Cannabinoids in facial pain: what is their role? Mark Weatherall, Consultant Neurologist

Presentations of trophies for fundraisers

MAB panel discussion and closure By MAB Chairs and CEO.

 

 

 

For many people attending the conference, this will be the first time they are meeting someone with Trigeminal Neuralgia. Those who attend the TNA National Conference last year was the start of making life-long friends;

“I was surrounded by people who just understood what I was going through. The day was so informative and I learned so much.”