Dear Friends and Members,
We hope this message finds you well.
Reminder: National Zoom Webinar – This Thursday Evening
We would like to remind you of our upcoming webinar, taking place this Thursday evening. This is a significant opportunity to hear from a key figure in the field, and we strongly encourage you to attend.
Topic: “Am I suitable for a microvascular decompression?”
Speaker: Mr Sinan Barazi, Joint Chair of the Medical Board
Date: Thursday, 18th July
Time: Log on from 19:00, event runs 19:30 – 20:30
Mr Barazi, a highly respected international expert, will provide comprehensive insights into the criteria, benefits, and potential risks associated with microvascular decompression. This session promises to offer invaluable information for our members. Don’t miss this chance to gain direct knowledge from one of the foremost authorities in the field and the joint chair of our Medical Advisory Board.
New Members: We warmly welcome you to your first Zoom call with us. We hope you find it both informative and engaging. This is a great opportunity to get acquainted with our community and the resources we offer.
Technical Tips:
- Ensure your Zoom application is updated to the latest version.
- Log in a few minutes early to test your audio and video settings.
If you have any questions, please email [email protected] in advance. We look forward to seeing you there and making the most of this learning opportunity together.
Grace Miller’s Brave Battle with Trigeminal Neuralgia Featured in The Sun
We are proud to announce that Grace Miller’s story has been featured in The Sun, highlighting the challenges faced by those with trigeminal neuralgia. This important coverage showcases the exceptional bravery of individuals like Grace and emphasises the support needed from our community.
In the article, Grace shares, “Sometimes I don’t want to get up because I know the pain will start again.” Her mother, Claire Miller, and father, Garry Miller, provide insights into the daily realities of managing this severe condition. Claire stated, “Every day is a struggle for her, and sometimes she feels like she can’t face another day of pain,” highlighting the emotional toll it takes on Grace.
Grace is also actively fundraising for the Trigeminal Neuralgia Association UK, demonstrating remarkable resilience and a desire to help others while managing her own pain.
You can read more about Grace’s journey and her family’s experiences in The Sun by clicking this link
Grace’s story serves as a poignant reminder of the profound impact trigeminal neuralgia has on young lives. Let’s continue to support Grace and others in our community through awareness and contributions.
We hope to see you on Thursday evening.
Warm regards,
Aneeta
Aneeta Prem MBE CEO TNA
Libra Study Drug Trial Update
The Libra Study, evaluating Basimglurant for Trigeminal Neuralgia (TN), continues to progress. This Phase II/III multicentre clinical trial, approved by the MHRA and an ethics committee, comprises:
• An 8-week run-in phase for dosage adjustment
• A 12-week double-blind phase
• A 52-week open-label extension phase
If you have registered for the trial and have not received communication, please contact us. Your participation is crucial for advancing TN research.
At TNA UK, we are committed to exploring various avenues that might bring relief to our members, from medical treatments to day-to-day management strategies. We hope these updates demonstrate our ongoing efforts to support you in managing life with TN.
Thank you for your continued support and involvement in our community.
