Dear Members and Friends,
I hope you are keeping well and staying warm.
I’m writing to remind you about our upcoming National Webinar Event on Thursday, 27th February, which I will be hosting.
We are pleased to welcome Mr George Eralil FRCS(SN), Consultant Neurosurgeon, who will be presenting on treatment options for Trigeminal Neuralgia (TN) and facial pain, including medicinal cannabis.
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Date: Thursday, 27th February
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Time: Log in from 7:00 PM; session from 7:30 PM to 8:30 PM
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Topic: Exploring treatment options beyond standard care, including medicinal cannabis
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Questions: Please email your questions in advance to [email protected]
About Mr George Eralil
Mr Eralil is a Consultant Neurosurgeon based at the University Hospital of Wales, with fellowship training in neuro-oncology and complex spinal surgery. He specialises in brain tumour surgery and the treatment of facial pain syndromes, including Trigeminal Neuralgia. His expertise also includes awake brain surgery for gliomas and procedures for degenerative spinal conditions.
Many of you have already sent in your questions, and if you haven’t you can still do so until 25th February. I know how much you are looking forward to Mr Eralil’s presentation—it promises to be an engaging and informative session, offering real insight into treatment options.
I look forward to seeing you there.
The Importance of Regional Support Groups
Living with Trigeminal Neuralgia can be isolating, but no one should have to go through it alone. TNA UK’s Regional Support Groups (RSGs) provide a space where members can come together for mutual support, shared experiences, and valuable information.
These groups are led by dedicated volunteers, many of whom live with TN themselves and understand the challenges. They are designed to build connections between members, carers, and loved ones across the UK. RSGs also help to combat isolation and address mental health concerns, such as anxiety, depression, and agoraphobia, which many of our members experience.
“Meeting someone else with TN has made me feel less alone it’s been great meeting in person, but it’s also good online too.
Why Attend an RSG?
- Connection – Meet others who truly understand TN and facial pain.
- Shared Knowledge – Exchange practical advice and coping strategies.
- Emotional Wellbeing – Reduce feelings of isolation by becoming part of a strong, supportive community.
- Up-to-Date Information – Stay informed about new treatments, medical advancements, and self-management techniques
Carers, loved ones, and supporters are welcome to attend, as their role in your journey is just as important. Attending together can help them understand TN better and feel supported themselves.
We are pleased to introduce two new RSG leads, who will be helping us expand and strengthen our support network:
New Support Groups
Tony Phillips-Jones – Cornwall and the Isles of Scilly
“Hi, I’m Tony from mid-Cornwall. At 56, I enjoy music and beach walks. After my Trigeminal Neuralgia diagnosis in October 2023 and subsequent Microvascular Decompression surgery in December 2024, I want to help others share their TN journeys and support each other, whether through online or in-person meetings.”
Wendy Bassett – Devon
“I’m Wendy, and I’m passionate about assisting those with TN. Being part of an RSG provides an opportunity to share experiences, access support, and ensure no one feels alone
We are also looking for a volunteer to lead a RSG in the Birmingham area. If you are based in Birmingham and would like to help support others with TN, please get in touch. This is a fantastic opportunity to make a real difference, create a strong support network, and help reduce isolation for those living with TN.
If you’re interested in joining a RSG, here is the Diary of Events https://www.tna.org.uk/diary-of-events/ or if you would like to start one in your area, or volunteer in other ways, please contact [email protected].
Supporting TNA UK – Kirsten Cooper’s Fundraiser
TNA UK Trustee and RSG Lead, Kirsten Cooper, has launched a fundraiser to support TNA UK’s work in research and support for those living with facial pain.
Reflecting on her journey, Kirsten shares:
“Approaching my 10-year anniversary with atypical Trigeminal Neuralgia, I wish I had joined TNA earlier. I don’t want anyone to suffer alone as I did in those first few days, weeks, and months.”
She has set a goal of raising £1,000 before summer, with every donation directly supporting people across the UK living with TN.
If you would like to support Kirsten’s fundraiser, please visit: by clicking the button below
Every contribution makes a difference.
Support Is Always Available
If you or someone you know is finding things difficult, help is available:
- TNA UK Helpline & E-Helpline – Available for members, friends, carers, and family seeking support. 0800 9991899 [email protected]
- Samaritans (116 123) – A 24/7 listening service for anyone in distress.
- Shout (Text ‘SHOUT’ to 85258) – A free, confidential text service providing immediate mental health support.
- Mind (0300 123 3393) – Offering guidance and support for mental health concerns.
- Your GP or NHS 111 – For medical concerns or referrals to specialist services.
If you are struggling, please don’t suffer in silence. Reach out—someone will listen.
Ensuring Our Work Continues
TNA UK is committed to supporting, informing, and advocating for people living with Trigeminal Neuralgia and facial pain. Our mission is to ensure that no one suffers in silence and that awareness, research, and support remain at the heart of everything we do.
To continue providing these essential services, we rely on your support.
If you would like to help, you can donate:
- Online at www.tna.org.uk
- By phone on 0800 999 1899
- By texting TNA to 70470 to donate £5
Your generosity ensures that our helpline, support groups, webinars, and awareness campaigns continue to reach those who need them most.
Looking Forward to Seeing You
TNA UK is more than just a charity; it is a community—a place where people understand, support, and uplift each other. Every conversation, every connection, and every act of kindness strengthens our movement.
I look forward to seeing you on Zoom on Thursday, 27th February, and sharing this experience with you.
Thank you for being a vital part of our community and for the support you provide to one another.
With warm wishes,
Aneeta
Aneeta Prem MBE
CEO, TNA UK