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Trigeminal neuropathic pain

Trigeminal neuropathic pain is pain caused by injury or disease affecting the trigeminal nerve. It is often more continuous than trigeminal neuralgia and may occur with numbness or altered sensation.

1. Understand the condition

2. Recognise the symptoms

Common signs and patterns

3. Diagnosis
 

How TN is assessed and diagnosed

4. Treatment and management

Medications & other treatment options

Daily life, self-care, and wellbeing

6. TNA UK Support
 

How can we help you and your family

What is Trigeminal neuropathic pain

The trigeminal nerve carries sensation from the face, mouth and teeth. When the nerve is damaged or diseased, pain may occur in the area supplied by the affected part of the nerve.

The pain may follow facial trauma, shingles, surgery, dental treatment or another neurological condition. Sometimes the exact cause is difficult to establish.

This condition is different from classical TN, although a person may describe both continuous pain and short shock-like episodes.

Signs And Symptoms

  • Burning, aching, stabbing or pins-and-needles pain
  • Continuous or near-continuous pain
  • Numbness, reduced sensation or altered feeling
  • Pain from light touch or temperature change
  • Pain beginning after an injury, procedure, shingles or surgery
  • Symptoms following the area of the affected trigeminal nerve

Triggers And Patterns

  • Touch, temperature change or movement may worsen symptoms
  • The painful area may be unusually sensitive
  • Some people have no consistent trigger

Assessment Or Diagnosis

Diagnosis is based on the history, examination and evidence of trigeminal nerve dysfunction. A clinician will ask about injuries, shingles, operations and dental procedures.

Dental examination may be needed when pain is felt in the teeth or jaw. Neurology, oral medicine, maxillofacial or pain services may be involved.

Imaging or other tests may be used when a structural or neurological cause needs to be investigated.

Treatment And Management

Treatment is individual and may include medicines used for neuropathic pain, topical treatment for localised symptoms and pain-management support. Psychological therapies may help with sleep, distress, activity and the impact of persistent pain alongside medical care. Their use does not mean that the pain is imagined.

Further surgery or irreversible dental treatment should not be presented as a routine answer when the source of pain is uncertain.

Do not start, stop or change prescribed medication without clinical advice.

Living with the condition

Persistent altered sensation can affect eating, face care, sleep and confidence. Protect numb skin from extreme heat, cold and accidental injury.

Keep a record of pain, numbness, triggers, treatment and the effect on daily life.

What you can do today

  • Protect areas of reduced sensation from very hot or cold temperatures and accidental injury.
  • Record the exact area of pain and numbness and whether symptoms followed shingles, injury, dental treatment or surgery.
  • Avoid repeated irreversible dental or surgical procedures unless there is a clear diagnosis and expected benefit.
  • Ask for review if the pain, numbness or sensitivity is worsening or affecting eating, sleep, face care or safety.

Preparing for your appointment

  • When the pain began and whether it followed injury, shingles, surgery or dental treatment
  • Exact area of pain and any numbness, tingling or reduced sensation
  • Whether pain is continuous, intermittent or triggered by touch or temperature
  • Any skin, eye, dental, jaw or neurological symptoms
  • Investigations, procedures and medicines already tried
  • How symptoms affect eating, face care, sleep, mood, work and safety

When pain is affecting your wellbeing

Persistent pain and altered sensation can affect confidence, sleep, mood and social contact.

Support for sleep, anxiety, low mood and coping can sit alongside medical treatment. It does not mean the pain is imagined.

If you feel unable to keep yourself safe, call 999 or go to A&E. For urgent mental-health help that is not an immediate emergency, use NHS 111 and select the mental-health option where available.

For family members and carers

  • Avoid touching numb or hypersensitive skin without asking.
  • Help protect areas of reduced sensation from heat, cold and accidental injury.
  • Support a single treatment record so repeated procedures and conflicting advice can be avoided.
  • Recognise the effect of persistent pain on sleep, mood and daily function.

Frequently Asked Questions

Answers to common questions about Trigeminal neuropathic pain

No. Trigeminal neuropathic pain is often continuous and accompanied by altered sensation, while TN usually causes brief shock-like attacks.

Nerve injury can follow dental or facial procedures, but the timing and examination must be assessed carefully.

No. Pain and reduced sensation can occur together when a sensory nerve is damaged.

Sources

This page is based on current clinical evidence and expert consensus.

Medical Disclaimer

This information is for general guidance and does not replace professional medical advice. Always consult your healthcare professional.

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